Table 5.
Association between patient response rate and PPI, piloting and recruitment source
| Factor | Round* | Factor category | Patients – median response rate, min, max |
| PPI | 1 | PPI (n=6) | 62%, 36%, 77% |
| PPI not reported (n=14) | 59%, 11%, 95% | ||
| 2 | PPI (n=22) | 78%, 32%, 94% | |
| PPI not reported (n=22) | 86%, 50%, 100% | ||
| 3 | PPI (n=9) | 92%, 71%, 100% | |
| PPI not reported (n=11) | 90%, 50%, 100% | ||
| Piloting | 1 | Piloting (n=10) | 61%, 36%, 95% |
| No piloting reported (n=10) | 58%, 11%, 91% | ||
| 2 | Piloting (n=21) | 84%, 41%, 100% | |
| No piloting reported (n=23) | 83%, 32%, 100% | ||
| 3 | Piloting (n=9) | 92%, 71%, 100% | |
| No piloting reported (n=11) | 89%, 50%, 100% | ||
| Recruitment source | 2 | Treatment Centre (n=6) | 89%, 83%, 90% |
| Patient organisation (n=20) | 77%, 32%, 100% | ||
| Treatment centre and patient organisation (n=11) | 77%, 50%, 93% | ||
| Neither treatment centre nor patient organisation (n=5) | 94%, 90%, 100% | ||
| Nothing reported on recruitment source (n=2) | 92%, 84%, 100% | ||
| Reminders | 2 | Reminders (n=30) | 82, 32,96 |
| No reminders reported (n=14) | 86, 57, 100 |
*Nineteen studies with round 1 data on participation rate, 44 studies with round 2 completion rate and 20 with round 3 completion rate data.
PPI, patient and public involvement.