Table 2.
Patient-Reported Outcomes included in ICHOM Standard Sets, classified according to the PROMIS domain framework [62]
| PROMIS Global Health domain | PROMIS profile domains | PROMIS additional domains | Non-PROMIS domains | Total | |||||||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| Physical health | Mental health | Social health | Physical health | Mental health | Physical health | ||||||||||||||||||
| Physical function | |||||||||||||||||||||||
| General health status |
Health-related quality of life | Quality of life | Fatigue | Pain | General | Mobility | Upper extre-mity | Sleep distur-bance | General | Anxiety | Depres-sion | Ability to participate in social roles/peer relation-ships | Dyspnea | Gastro-intestinal Symptoms | Sexual function | Cognitive function | Hearing | Speech communication | Urinary symp-toms | Vision | Other | ||
| Addiction | 1 | 1 | 1 | 1 | 5 | 10 | |||||||||||||||||
| Adult oral health | 1 | 1 | 2 | 1 | 4 | 9 | |||||||||||||||||
| Advanced prostate cancer | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 8 | ||||||||||||||
| Artrial fibrilation | 1 | 1 | 1 | 1 | 1 | 1 | 6 | ||||||||||||||||
| Breast cancer | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 2 | 2 | 1 | 5 | 18 | ||||||||||
| Cataract | 1 | 1 | |||||||||||||||||||||
| Chronic kidney disease | 1 | 1 | 1 | 2 | 1 | 6 | |||||||||||||||||
| Cleft lip and palate | 1 | 1 | 2 | 1 | 1 | 5 | 11 | ||||||||||||||||
| Colorectal cancer | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 6 | 3 | 1 | 18 | |||||||||||
| Congetinal heart disease | 1 | 1 | 1 | 1 | 1 | 5 | |||||||||||||||||
| Congenital upper limb anomalies | 1 | 1 | 1 | 1 | 4 | ||||||||||||||||||
| Coronary artery disease | 1 | 1 | 1 | 1 | 1 | 5 | |||||||||||||||||
| COVID-19 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 10 | ||||||||||||
| Craniofacial microsomia | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 4 | 13 | ||||||||||||
| Dementia | 1 | 1 | 1 | 3 | |||||||||||||||||||
| Depression and anxiety | 1 | 4 | 1 | 2 | 3 | 11 | |||||||||||||||||
| Depression and anxiety for children and young people | 2 | 1 | 2 | 2 | 7 | ||||||||||||||||||
| Diabetes | 1 | 1 | 1 | 3 | |||||||||||||||||||
| Hand and wrist conditions | 1 | 1 | 1 | 1 | 1 | 1 | 6 | ||||||||||||||||
| Heart failure | 1 | 1 | 2 | 1 | 1 | 1 | 1 | 2 | 10 | ||||||||||||||
| Hip and knee osteoarthritis | 1 | 1 | 1 | 1 | 4 | ||||||||||||||||||
| Hypertension in low and middle income countries | 1 | 1 | 2 | ||||||||||||||||||||
| Inflammatory arthritis | 1 | 1 | 1 | 1 | 1 | 5 | |||||||||||||||||
| Inflammatory bowel disease | 1 | 1 | 1 | 2 | 3 | 8 | |||||||||||||||||
| Localized prostate cancer | 1 | 1 | 2 | 1 | 5 | ||||||||||||||||||
| Low back pain | 1 | 2 | 1 | 1 | 5 | ||||||||||||||||||
| Lung cancer | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 2 | 1 | 10 | |||||||||||||
| Macula degeneration | 1 | 1 | 1 | 4 | |||||||||||||||||||
| Older person | 1 | 1 | 1 | 2 | 1 | 6 | |||||||||||||||||
| Overactive bladder | 1 | 1 | 1 | 3 | |||||||||||||||||||
| Overall adult health | 2 | 2 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 3 | 1 | 1 | 16 | ||||||||||
| Overall pediatric health | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 13 | |||||||||
| Parkinson's disease | 1 | 1 | 1 | 1 | 5 | 1 | 2 | 2 | 2 | 1 | 1 | 1 | 1 | 7 | 27 | ||||||||
| Pediatric facial palsy | 1 | 1 | 2 | 4 | |||||||||||||||||||
| Personality disorders | 1 | 2 | 3 | 1 | 2 | 9 | |||||||||||||||||
| Pregnancy and childbirth | 1 | 1 | 1 | 1 | 4 | ||||||||||||||||||
| Preterm and hospitalized newborn health | 1 | 1 | 1 | 1 | 1 | 1 | 1 | 3 | 1 | 11 | |||||||||||||
| Psychotic disorders | 1 | 1 | 2 | 1 | 2 | 2 | 2 | 11 | |||||||||||||||
| Stroke | 2 | 1 | 1 | 1 | 1 | 1 | 1 | 8 | |||||||||||||||
| Total | 11 | 18 | 11 | 11 | 18 | 28 | 6 | 3 | 8 | 16 | 15 | 18 | 37 | 6 | 13 | 12 | 7 | 4 | 7 | 5 | 6 | 58 | |
| Number of sets that include the outcome | 8 | 18 | 10 | 10 | 17 | 21 | 6 | 3 | 7 | 14 | 12 | 16 | 25 | 5 | 6 | 9 | 7 | 4 | 7 | 4 | 6 | 25 | |
The numbers in each cell represent the number of outcomes covering the respective PRO concept included in the ICHOM Standard Set Reference Guide