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. 2021 Jul 1;36(3):265–284. doi: 10.1007/s10823-021-09432-0

Table 1.

Semi-structured focus group discussion guide

Disease:

  a. When you hear about Alzheimer's disease, what are the symptoms that you associate with the disease?

  b. What worries or fears do you have about Alzheimer's disease?

Diagnostic and Care:

  a. Have you heard of tests for the diagnosis of Alzheimer's? Which? What do you think about them? Do you have any concerns or fears about them?

  b. Have you heard of tests for Alzheimer's prognosis? Which? What do you think about them? Do you have any concerns or fears about them?

  c. What barriers / challenges do you think exist for the timely diagnosis of Alzheimer's?

  d. What do you think about the medical care associated with Alzheimer's? What challenges do you think exist (or have experienced) related to the medical care associated with Alzheimer's?

  e. What do you think about caring for family members with Alzheimer's at home?

Prevention:

  Do you know or have you heard of any way to prevent Alzheimer's or interventions that can help people with Alzheimer's?

Resources and Suggestions:

  a. What resources do you know in the community for the prevention and caregiving of Alzheimer’s disease?

  b. Do you have any suggestions on how to spread knowledge about Alzheimer’s disease

  c. Do you have any suggestions on how to address current challenges in the diagnosis or caregiving of Alzheimer’s disease?

  c. Is there anything else you would like to comment on your perceptions around Alzheimer's disease?