Table 1.
Cohort summary.
| Overall (N = 199) | |
|---|---|
| Sex, n(%) | |
| Female | 142 (71.4%) |
| Male | 56 (28.1%) |
| Prefer not to disclose | 1 (0.5%) |
| Age (years) | |
| Median [Q1, Q3] | 56.0 [44.0, 65.0] |
| Ethnicity, n(%) | |
| Asian/Asian British | 2 (1.0%) |
| Black/African/Caribbean/Black British | 1 (0.5%) |
| Caucasian/White | 188 (94.5%) |
| Mixed/multiple ethnic groups | 4 (2.0%) |
| Other | 4 (2.0%) |
| Condition | |
| Cerebral palsy | |
| n (%) | 11 (5.5%) |
| Median duration [Q1, Q3] (years) | 32.0 [29.5, 40.2] |
| Fibromyalgia, chronic fatigue syndrome, CRPS | |
| n (%) | 15 (7.5%) |
| Median duration [Q1, Q3] (years) | 6.25 [5.75, 15.2] |
| Muscular dystrophy, neuromuscular diseases | |
| n (%) | 22 (11.1%) |
| Median duration [Q1, Q3] (years) | 21.3 [12.3, 30.9] |
| Multiple sclerosis | |
| n (%) | 67 (33.7%) |
| Median duration [Q1, Q3] (years) | 13.5 [6.75, 24.5] |
| Parkinson's disease | |
| n (%) | 36 (18.1%) |
| Median duration [Q1, Q3] (years) | 4.75 [2.65, 8.31] |
| Spinal cord injury | |
| n (%) | 32 (16.1%) |
| Median duration [Q1, Q3] (years) | 9.75 [5.00, 18.0] |
| Other (stroke, ataxia's, spina bifida, dystonia) | |
| n (%) | 16 (8.0%) |
| Median duration [Q1, Q3] (years) | 15.5 [7.00, 30.7] |
| Mobility aid, n(%) | |
| Manual wheelchair | 35 (17.6%) |
| Power wheelchair | 20 (10.1%) |
| Mobility scooter | 6 (3.0%) |
| Zimmer frame | 12 (6.0%) |
| Walking sticks | 43 (21.6%) |
| Crutches | 10 (5.0%) |
| None | 70 (35.2%) |
| Other | 3 (1.5%) |
| Situation, n(%) | |
| Self-imposed isolation/shielded (considered at-risk) | 99 (49.7%) |
| Isolation due to government legislation | 25 (12.6%) |
| Practicing social distancing | 66 (33.2%) |
| None of the above | 5 (2.5%) |
| Other | 4 (2.0%) |