Table 2.
Question | Number of respondents | Responses | |||||||||||
1. How much would you say you know about how the following organizations use health data for research purposes? |
|
Never heard of (%) | Heard of, know nothing about (%) | Just a little (%) | A fair amount (%) | A great deal (%) | |||||||
|
a. NHSa | 407 | 14.3 | 13.3 | 30.7 | 26.8 | 15 | ||||||
|
b. Commercial organizations | 405 | 25.7 | 22.7 | 27.9 | 15.1 | 8.6 | ||||||
|
c. University researchers | 405 | 18.5 | 21.7 | 32.1 | 19.5 | 8.1 | ||||||
2. How likely would you be to allow your anonymized health information to be used for the purposes of medical research by the following organizations? |
|
Very unlikely (%) | Fairly unlikely (%) | Not sure (%) | Fairly likely (%) | Very likely (%) | |||||||
|
a. NHS | 408 | 4.4 | 3.9 | 13.7 | 30.4 | 47.5 | ||||||
|
b. Commercial organizations | 405 | 22.0 | 17.5 | 34.1 | 14.1 | 12.3 | ||||||
|
c. University researchers | 405 | 6.7 | 6.4 | 21.2 | 31.4 | 34.3 | ||||||
|
|
Very unlikely (%) | Fairly unlikely (%) | Not sure (%) | Fairly likely (%) | Very likely (%) | |||||||
3. To what extent would you support ICLb creating a large, anonymized set of data of routinely collected ICHNTc health care data for AId research purposes? | 408 | 1.5 | 2.5 | 12.3 | 48.5 | 35.3 | |||||||
|
|
Very unlikely (%) | Fairly unlikely (%) | Not sure (%) | Fairly likely (%) | Very likely (%) | |||||||
4. To what extent would you support the transfer of your anonymized health data to ICL if there was a very small chance of it being reidentified after transfer? | 407 | 13.0 | 13.5 | 17.2 | 36.3 | 19.9 | |||||||
Strongly disagree (%) | Disagree (%) | Neither agree nor disagreed (%) | Agree (%) | Strongly agree (%) | |||||||||
5. Currently, researchers are legally allowed to access anonymized health data for research without the need for patient consent. To what extent do you agree with this? | 407 | 9.3 | 14.7 | 20.1 | 39.1 | 16.7 |
aNHS: National Health Service.
bICL: Imperial College London
cICHNT: Imperial College Healthcare NHS Trust.
dAI: artificial intelligence.