Skip to main content
. 2021 Aug 26;23(8):e26162. doi: 10.2196/26162

Table 2.

Respondents’ opinions on health data usage and sharing for research.

Question Number of respondents Responses
1. How much would you say you know about how the following organizations use health data for research purposes?
Never heard of (%) Heard of, know nothing about (%) Just a little (%) A fair amount (%) A great deal (%)

a. NHSa 407 14.3 13.3 30.7 26.8 15

b. Commercial organizations 405 25.7 22.7 27.9 15.1 8.6

c. University researchers 405 18.5 21.7 32.1 19.5 8.1
2. How likely would you be to allow your anonymized health information to be used for the purposes of medical research by the following organizations?
Very unlikely (%) Fairly unlikely (%) Not sure (%) Fairly likely (%) Very likely (%)

a. NHS 408 4.4 3.9 13.7 30.4 47.5

b. Commercial organizations 405 22.0 17.5 34.1 14.1 12.3

c. University researchers 405 6.7 6.4 21.2 31.4 34.3


Very unlikely (%) Fairly unlikely (%) Not sure (%) Fairly likely (%) Very likely (%)
3. To what extent would you support ICLb creating a large, anonymized set of data of routinely collected ICHNTc health care data for AId research purposes? 408 1.5 2.5 12.3 48.5 35.3


Very unlikely (%) Fairly unlikely (%) Not sure (%) Fairly likely (%) Very likely (%)
4. To what extent would you support the transfer of your anonymized health data to ICL if there was a very small chance of it being reidentified after transfer? 407 13.0 13.5 17.2 36.3 19.9
Strongly disagree (%) Disagree (%) Neither agree nor disagreed (%) Agree (%) Strongly agree (%)
5. Currently, researchers are legally allowed to access anonymized health data for research without the need for patient consent. To what extent do you agree with this? 407 9.3 14.7 20.1 39.1 16.7

aNHS: National Health Service.

bICL: Imperial College London

cICHNT: Imperial College Healthcare NHS Trust.

dAI: artificial intelligence.