| Age, mean±SD |
68.6±12.6 |
62.4±13.0 |
| Female, n (%) |
78 (54.2) |
71 (50.0) |
|
Type of relation to the patient, n (%)
|
|
|
| Husbound/wife |
------------- |
102 (70.8) |
| Child |
------------- |
35 (24.3) |
| Sibling |
------------- |
3 (2.1) |
| Other relative/close friend |
------------- |
4 (2.8) |
|
Living arrangements, n (%)
|
|
|
| Married, n (%) |
105 (72.9) |
122 (84.7) |
| Children living in the same household |
16 (11.6) |
26 (19.8) |
| Living alone |
39 (27.1) |
17 (11.8) |
| Living in own accommodation |
137 (95.4) |
------------- |
| Living in caring home |
5 (3.5) |
------------- |
|
Education, n (%)
|
|
|
| No formal education |
8 (5.6) |
6 (4.2) |
| Elementary school |
38 (26.4) |
29 (20.1) |
| Vocational education |
34 (23.6) |
31 (21.5) |
| High school |
23 (16.0) |
33 (22.9) |
| University |
41 (28.4) |
45 (31.3) |
|
Employment, n (%)
|
|
|
| Employed or own company |
------------- |
67 (46.5) |
| Disability pension/ Pension |
------------- |
67 (46.5) |
| Sick leave |
------------- |
4 (2.8) |
| Unemployed |
------------- |
2 (1.4) |
| Parental leave |
------------- |
2 (1.4) |
| Other |
------------- |
2 (1.4) |
|
Medical diagnosis requires palliative care, n (%)
|
|
|
| Cancer |
139 (96.5) |
------------- |
| COPD |
3 (2.1) |
------------- |
| ALS |
2 (1.4) |
------------- |
| Number of years having knowledge of the disease, mean±SD |
4.1±3.8 |
|
