TABLE 2.
Descriptive Statistics for the FACQ-PC Subscales at Baseline and 3-Month Postintervention Follow-Up
| Outcome | Baseline (n = 126) | 3 mo Postintervention Follow-up (n = 102a) | The Effect Size of Intervention At 3 mo | ||
|---|---|---|---|---|---|
| FACE-TC (n = 83), mean (SD) | Treatment-as-Usual Control (n = 43), mean (SD) | FACE-TC (n = 65), mean (SD) | Treatment-as-Usual Control (n = 37), mean (SD) | ||
| Caregiver strainb (higher strain = more strain) | 2.17 (0.75) | 2.34 (0.89) | 2.15 (0.88) | 2.39 (0.81) | 0.28 |
| Positive caregiving appraisalc (higher score = more positive) | 4.51 (0.46) | 4.61 (0.40) | 4.55 (0.45) | 4.47 (0.54) | 0.17 |
| Caregiver distressd (higher score = more distress) | 2.19 (0.78) | 2.44 (0.80) | 2.23 (0.90) | 2.49 (1.01) | 0.28 |
| Family well-beinge (higher score = better well-being) | 4.13 (0.67) | 4.25 (0.63) | 4.12 (0.70) | 4.09 (0.67) | 0.03 |
One control surrogate missed the visit.
Strain subscale items are as follows: as a caregiver, I feel… (tired and run down; my own health has suffered; I am losing control over my life; I don’t have enough time for myself; isolated and alone in caring for (patient’s name); have had to give up my social life to care for (patient); I have not been able to do my job or study as well as I would like; caring for (patient) creates financial difficulties.
Positive caregiving-appraisal items are as follows: caring for (patient) is satisfying; it is a privilege to care for (patient); caring for (patient) has made me feel closer to him or her; I am able to comfort (patient) when he or she needs it; I feel confident I can handle most problems in caring for (patient); I feel useful in my relationship with (patient); I am committed to caring for (patient).
Caregiver distress subscale items are as follows: I feel guilty about not being able to do more for (patient); I worry that I won’t be able to do enough to care for (patient); I feel anxious about caring for (patient); I feel depressed about caring for (patient); I feel sad about how life could have been for (patient).
Family well-being subscale items are as follows: our family works together to solve problems; our family is able to talk about our feelings with each other; I feel our family is closer because of caring for (patient); because of caring for (patient) our family is better able to cope with change; our family disagrees a lot caring for (patient); our family avoids discussing their fears and concerns about caring for (patient).