Table 2.
Unmet supportive care needs: prevalence and association with distress (NTotal = 200; NNonClinicalDistress = 163; NClinicalDistress = 34)
| Total group N (%) |
Non-clinical distress N (%) |
Clinical distressa N (%) |
p | |
|---|---|---|---|---|
| Comprehensive care information | 164 (81.6) | 129 (79.1) | 32 (94.1) | .040 |
| 1. Up to date information | 45 (22.6) | 29 (17.8) | 16 (47.1) | .001 |
| 2. Information for others | 45 (22.6) | 32 (19.6) | 13 (38.2) | .019 |
| 3. Understandable information | 79 (39.7) | 59 (36.2) | 19 (55.9) | .033 |
| 4. Best medical care | 90 (45.2) | 69 (42.3) | 20 (58.8) | .079 |
| 5. Local health care service | 104 (52.5) | 79 (48.8) | 25 (73.5) | .009 |
| 6. Manage health with team | 116 (58.3) | 91 (55.8) | 25 (73.5) | .056 |
| 7. Doctor talk to each other | 115 (57.8) | 87 (53.4) | 28 (82.4) | .002 |
| 8. Complaints addressed | 134 (67.3) | 107 (65.6) | 27 (79.4) | .117 |
| 9. Complimentary therapy | 73 (36.7) | 53 (32.5) | 20 (58.8) | .004 |
| Physical effects | 45 (22.4) | 26 (16.0) | 17 (50.0) | .001 |
| 11. Manage side effects | 24 (12.1) | 11 (6.7) | 13 (38.2) | .001 |
| 12. Changes to quality of life | 26 (13.1) | 13 (8.0) | 13 (38.2) | .001 |
| 13. Fertility | 8 (4.0) | 4 (2.5) | 4 (11.8) | .012 |
| 26. Changes to my body | 20 (10.0) | 7 (4.3) | 13 (38.2) | .001 |
| Psychological effects | 69 (34.3) | 41 (25.2) | 26 (76.5) | .001 |
| 10. Reduce stress in my life | 30 (15.1) | 13 (8.0) | 17 (50.0) | .001 |
| 19. Concerns about cancer coming back | 39 (19.5) | 22 (13.5) | 17 (50.0) | .001 |
| 20. Emotional support for me | 31 (15.5) | 13 (8.0) | 18 (52.9) | .001 |
| 24. Talk to others | 29 (14.5) | 19 (11.7) | 10 (29.4) | .008 |
| 29. Move on with my life | 16 (8.0) | 2 (1.2) | 14 (41.2) | .001 |
| 30. Changes to beliefs | 21 (10.5) | 8 (4.9) | 13 (38.2) | .001 |
| 31. Acknowledging the impact | 15 (7.5) | 5 (3.1) | 10 (29.4) | .001 |
| 32. Survivor expectations | 14 (7.0) | 6 (3.7) | 8 (23.5) | .001 |
| 33. Decisions about my life | 20 (10.0) | 8 (4.9) | 12 (35.3) | .001 |
| 34. Spiritual beliefs | 9 (4.5) | 3 (1.9) | 6 (17.6) | .001 |
| 35. Make my life count | 16 (8.0) | 4 (2.5) | 12 (35.3) | .001 |
| Practical issues | 76 (37.8) | 52 (31.9) | 22 (64.7) | .001 |
| 14. Employment | 15 (7.6) | 6 (3.7) | 9 (27.3) | .001 |
| 15. Financial support | 43 (21.7) | 25 (15.4) | 18 (52.9) | .001 |
| 16. Life/travel insurance | 19 (9.6) | 11 (6.8) | 8 (23.5) | .003 |
| 17. Legal services | 22 (11.1) | 11 (6.8) | 11 (32.4) | .001 |
| 18. Accessible hospital parking | 24 (12.1) | 15 (9.3) | 9 (26.5) | .005 |
| 28. Ongoing case manager | 40 (20.0) | 27 (16.6) | 13 (38.2) | .004 |
| Relationships | 47 (23.4) | 25 (15.3) | 20 (58.8) | .001 |
| 21. Support partner/family | 27 (13.5) | 10 (6.1) | 17 (50.0) | .001 |
| 22. Impact on my relationship | 19 (9.5) | 6 (3.7) | 13 (38.2) | .001 |
| 23. New relationships | 12 (6.0) | 2 (1.2) | 10 (29.4) | .001 |
| 25. Handle social/work situations | 18 (9.0) | 11 (6.7) | 7 (20.6) | .011 |
| 27. Problems with sex life | 25 (12.6) | 12 (7.4) | 13 (38.2) | .001 |
| Total | 172 (85.6) | 136 (83.4) | 33 (97.1) | .039 |
a Case criteria obtained based on T- ≥ 63 in GSI or at least in two subscales, using published norms for community sample