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. 2021 Jun 27;30(1):264–274. doi: 10.1111/hsc.13399

TABLE 3.

Quotes of participants in the interview

Subthemes Initial concepts Quotes
Insularity of the patient Isolated

“Our house has two separate floors. Since I was discharged from the hospital and I came home, I have been quarantined on the second floor of our house and I have not seen anyone, even my wife and children are separated from me, and only when the food is behind the door, we have a chance to talk or call each other. It was hard for me. I feel like I'm imprisoned”. (Participant 3)

“I was never separated from my husband. We were always together. I never went anywhere alone. But since I got this disease, my husband had to stay away from me”. (Participant 23)

“After two months of being quarantined at home, I was sensitive to every little thing. It's really hard to be alone in a room and just look at the door and the wall”. (Participant 17)

Withdrawal from social relationships

“I live with my wife and eldest son who is married. I have not seen any since I got sick, I am worried that my grandson will take me and get sick. Oh, he is small and he comes in my arms a lot. I stayed in this room all the time, no matter how much I watched TV, I was really bored, I feel like I was put in a grave that I have no connection with anyone”. (Participant 6)

“Every day, some neighbors secretly disinfected our hallways and doors. Everyone who saw my family quickly moved away from us, which was annoying to us. In their opinion, we seem to have low social awareness and poor health and we took the corona”. (Participant 11)

“I felt very lonely, yet I did not like to communicate with others, even my friends called and I refused”. (Participant 14)

Concealment Hiding the symptoms of the disease from the family to prevent anxiety

“My family didn't tell any of our relatives and neighbors about my illness because we knew that if they found out, they would harass us and change their minds about us, it was as if we were leprosy patients”. (Participant 11)

“Some people say that you got sick because you did not comply. But I'm sure I was very careful”. (Participant 18)

“My wife's family has been stigmatizing us since I became ill, and that they are weak in immunity and susceptible to disease. The stigma of illness made them feel sorry or disgusted. These issues increased my stress”. (Participant 4)

Hiding the disease because of the fear of those around to be infected

“I am a member of a charity and I have many friends there. But since I found out my parents were sick at home, everyone has been asking me where I got the disease from. Probably someone from outside transmitted the disease to them or your parents did not comply. Their work made me bored and I decided not to tell them I got infected and they took it from me”. (Participant 5)

“My family hid the disease from everyone out of fear. After the neighbors found out about my illness, one of them called the emergency services to evacuate the family. They have coronas. They pollute the environment”. (Participant 12)

Patient as the life‐threatening centre Public escape from the patient

Another participants said: “I went back to work after recovery, but I saw that all my colleagues were moving away from me, they even came to my office very rarely, as if they thought that the virus was everywhere and if they came close, they would get it soon. So that I would not go to work for a while”. (Participant 22)

“I am an employee, and if we calculate the latency period of disease, it was probably before the announcement of the disease, and I did not protect it at that time. Although I strictly complied after the announcement, it was no longer useful. Everyone blamed me for my illness and told me sarcastically that you should be more careful. Even after returning to the office, they still ran away from me”. (Participant 19)

Avoidance of family members from approaching the patient

“My sister and brother were unaware of my illness. I told them after recovery, my sister was very scared, and every day she eats a cup of lemon juice with ginger and walks away from me so that she doesn't get sick”. (Participant 8)

“I have bad thoughts. I think going to my mom and dad… they're scared too and worry take the disease from me. These thoughts get on my nerves”. (Participant 20)

“Family members are very important; for example, my brothers and sisters are afraid that they might get sick. They just thought about themselves and quarantined me in a room, and they did not pay attention to me and did not listen to me”. (Participant 7)

Financial concerns Job Vulnerability

“I am manager of a private company and I stayed at home for several months, but now I have no income, I am very worried. How many of my employees should I fire? I really think this is a problem that is as dangerous as the disease and it drives a person crazy”. (Participant 18)

“I work in a restaurant, I do not know, maybe I got the disease from the people who came there, my boss told me that I can no longer come to work with these conditions, I returned to work after the disease got better, but my salary was halved. No one came to the restaurant to eat anymore, and even the acceptance of food for home was reduced. I have to look for a new job now because I can't make a living like this”. (Participant 9)

Economic hardship

“It's been about two months since I got Corona disease and I don't work; I think they have hired someone else instead of me in the factory. I don't know what to do. I have all the loans and installments to pay. On the other hand, we have to think about the monthly rent of the house and the cost of our own food”. (Participant 13)

“Now, finally, it does not stay like this and this disease will end, but what will happen tomorrow? With these costs and economic problems of the people. What happens next? I think we should be more afraid of tomorrow than now”. (Participant 11)

Non‐ response of the treatment team after discharge Lack of psychological support of the treatment team

“Well, we can't deal with family issues because we have a lot of work to do. I accept that there is a gap between families and us. But if we want to work with families, we can't deal with our responsibilities”. (Participant 17)

“The first time I took the test, they said I had corona and I had to be hospitalised. I said I wanted to be quarantined at home. Please tell me what to do, but I saw that no one answered my question. They were all so busy, do not pay any attention to the people who are going to be treated at home”. (Participant 10)

Ignoring the patient's care problems at home

“There are strict rules in the hospital that don't allow you to see a doctor directly, and they're always busy. They don't care how do I deal with problems? I have heart disease along the corona. It doesn't matter to the doctor. When I was hospitalised, my family cried until morning because they really felt I will dead”. (Participant 25)

“I was very scared when I found out I was taking Corona, but the medication did not work well. It was a very difficult situation. I was a little scared because I was unfamiliar with the disease, and the number of people who had recovered was very small, and I almost did not know anyone around me who had recovered, at least to get guidance from them”. (Participant 15)

Concerns about the persistence condition of the disease Symptoms persistence

“I feel scared; I'm worried that this disease will stay in my body for the rest of my life. Now that I've been discharged and come home, I feel very tired and my whole muscles ache”. (Participant 23)

“It's been more than a month since I got sick, early on I couldn't breathe at all to talk. But I still do not get better, my body is so weak that I can no longer hold the glass in my hand, one day I do not have a headache and the next day I see my headache has started again”. (Participant 24)

Belief in the incurability of the disease

“Sometimes I feel good and sometimes I feel bad. I feel up and down. But shortness of breath is a bad thing. Shortness of breath… it seems that no matter how careful you are, this disease does not go away, it will come back and grab your collar”. (Participant 15)

“Although it has been three months since I recovered, I still feel tired and have muscle aches. I used to be very active and did all the work myself, but now I feel like I will never go back to those days”. (Participant 21)

Recourse to spirituality Trust in God

“Until yesterday, maybe all I could think about was finding money or buying clothes or nail polish for a party tomorrow night. But now I see how insignificant things are in my mind, when you are going to die, it does not matter how much money you have in your bank account or what nail polish you have, the important thing is to find out what you were originally created for and where your destination should be”. (Participant 12)

“When I was sick…, I spent most of my time on the Internet and WhatsApp. Or I prayed, read Quran. I knew that God would never leave me alone and always helped me”. (Participant 2)

Vows and thanksgiving

“This disease affected me a lot. I got closer to God. Talking to God calms me down and makes my heart stronger. I feel less ungrateful and I think it's all in my best interest”. (Participant 16)

“I decided to pursue good deeds after this illness; God has been very kind to me, and I am back to life, so I have to repay God's love”. (Participant 4)

Strengthening hope Believe in a better tomorrow

“Well, it has already happened, should I regret and be sad; so what? I have to be hopeful and see what I have to do to get out of this situation. With this disease, life has changed for my family and me. But it is possible to make the situation as it was with a little bit of prudence and hope in God”. (Participant 19)

“One should not be afraid. If God wills and the deadline has come, you will die. If you live to be in the world, you will be fine. One has to think good thoughts. Fear is useless. I thought I would get better”. (Participant 14)

“I do not think about death at all. Because of the fear of the dead brother. I do not fear myself at all. One must take care of one's own health. The soul is very important. If I am not afraid and I hope, my body will kill these viruses little by little. One must give oneself positive energy”. (Participant 23)

Accompanying family

“My wife always assure me, she always comforts me that this disease is nothing, if we relying on God, all problems will be solved”. (Participant 24)

“My father comes with me, doctor, whenever he is at home, he pays attention to me taking my pills, following my work, calming me down, and I talk to him”. (Participant 20)