| Burden I don’t want to burden my family |
I’ve already told my family that if I am diagnosed with Alzheimer’s, find a nursing home. I think the family members suffer worse They are sick themselves just trying to deal with … take care of … their family person with it. Anything that we can do to help prevent what my family has gone through We haven’t had anyone with it in our family and I don’t want to go looking for trouble. My aunt would go on and on about how much of a burden it was. You just feel so bad because you know it is, but not much you can do to help Would you lose your insurance if you have it? The last thing I want is to be a burden on my family.
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| Fear/I’m afraid that I’ll get it later in life |
That I’ll get it before they figure out a way to stop it Fear of having it and fear of cost I’m on such a fixed income, that just can’t be my priority; my food and water have to be my priority That I might get it. [dementia]. I’m afraid of having to take care of my cousins or my aunt Well yea … it runs in families, right? I hope I don’t get it but I bet that by the time I would, they will have it all figured out and have medicine to prevent it … I worry about my parents Not having a brain that works I’m afraid that I’ll get it later in life
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| Awareness/Know what you have so you can best deal with it |
It would help the person and family both if they knew ahead of time It would help the family I think if we just knew what to expect Maybe if we had known what was coming we might have been better prepared for it I think forewarned is forearmed The earlier you’re diagnosed, the better to help the symptoms Maybe they [family] would help more if they understood what was going on If we had a routine once a year “brain fair” or something, that would help make people more aware The more you know about someone’s health, the more you are able to help them I think if you know what you are facing, you can better prepare for it It’s important like any other disease to know what you have so you can best deal with it
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| Help/Getting them to the right doctor would be a problem |
They can’t get help. They can’t get to help I would talk to their family member about taking them to the doctor to be checked Get more help here … go to these homes with me; get them screened where they live It is hard to make that call (to find out) without resources in place There’s so many resources out there and nobody knows
Getting Them To The Right Doctor Would Be A Problem
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| Fatalism/By the time they get help it’s too late |
Whaddya gonna do about it? It’s Part of livin and dyin And who is goin to help em? It would help the person with it if there was a way to treat it I would need help to know how I could help How are you going to help them after testing? I mean, you can’t really say, “hey you may be getting dementia” without telling them how you can help. By the time they get help it’s too late
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