Table 1.
EULAR overarching principles (OAPs) and recommendations for the implementation of self-management strategies in patients with inflammatory arthritis (IA)
| LoE (1–5) |
SoR (A–D) | Level of agreement (0–10) |
||
| Mean (SD) | % with score ≥8 | |||
| OAPs | ||||
| A. Self-management implies taking an active role in learning about one’s condition and in the shared decision-making process about one’s health and care pathway. | n.a | n.a | 9.5 (0.6) | 100 |
| B. Self-efficacy (personal confidence to carry out an activity with the aim of achieving a desired outcome) has a positive effect on various aspects of living with IA. | n.a | n.a | 9.6 (0.7) | 100 |
| C. Patient organisations often provide valuable self-management resources and collaboration between healthcare professionals (HCPs) and patient organisations will therefore benefit patients. | n.a | n.a | 9.4 (1.0) | 88 |
| Recommendations | ||||
| R1. HCPs should encourage patients to become active partners of the team and make them aware of HCPs and patient organisations involved in all aspects of the care pathway. | 5 | D | 9.5 (1.1) | 87 |
| R2. Patient education should be the start point and underpin all self-management interventions. | 1A | A | 9.5 (0.8) | 93 |
| R3. Self-management interventions that include problem solving and goal setting and, where relevant to the individual and available, cognitive behavioural therapy should be incorporated into routine clinical practice to support patients. | 1A | A | 9.1 (1.4) | 93 |
| R4. HCPs should actively promote physical activity at diagnosis and throughout the disease course. | 1A | A | 9.9 (0.3) | 100 |
| R5. Lifestyle advice based on evidence should be given to better manage common comorbidity and patients should be guided and encouraged by their healthcare team to adopt healthy behaviours. | 5 | D | 9.6 (0.6) | 100 |
| R6. Better emotional well-being leads to better self-management; therefore, mental health needs to be assessed periodically and appropriate intervention should be made if necessary. | 5 | D | 9.4 (1.3) | 93 |
| R7. HCPs should invite discussion with patients about work and signpost to sources of help where appropriate or where needed. | 5 | D | 9.6 (0.5) | 100 |
| R8. Digital healthcare can help patients to self-manage and should be considered for inclusion in supported self-management where appropriate and available. | 1B | A | 9.3 (1.0) | 93 |
| R9. HCPs should make themselves aware of available resources to signpost patients to, as part of optimising and supporting self-management. | 5 | D | 8.7 (1.2) | 100 |
EULAR, European Alliance of Associations for Rheumatology; LoE, level of evidence (1–5; 1 indicating evidence from high-quality randomised clinical trial (RCT) data and 5 indicating evidence from expert opinion without explicit critical appraisal or based on physiology, bench research or ‘first principles’)11; n.a, not applicable; SoR, strength of recommendation (A–D; A indicating consistent level 1 studies (RCTs) and D indicating level 5 evidence or troublingly inconsistent or inconclusive studies of any level).