Table 1.
Summary of Indigenous Ethics Boards, Frameworks, and Protocols Identified in the Scoping Study.
| Indigenous ethical protocol | Scope |
|---|---|
| Health Information Research Governance Committee (University of Manitoba, 2014) | Research that identifies Manitoba First Nations at a regional level |
| The First Nations of Quebec and Labrador Health and Social Services Commission (FNQLHSSC, 2014) | First Nations of Quebec and Labrador |
| Indigenous Health Research Advisory Committee (ACHH, 2017) | Research conducted within the Chronic Pain Network involving Indigenous populations |
| Six Nations Research Ethics Committee (Six Nations of the Grand River Territory, 2014) | Research being conducted on Six Nations of the Grand River Territory |
| Manitoba Metis Federation Research Ethics Board (University of Manitoba, 2014) | Manitoba Metis |
| The Labrador Aboriginal Health Research Committee (Brunger & Bull, 2011) | Indigenous communities of Labrador |
| Mi’kmaq Ethics Committee (Mi’kmaq Ethics Watch, 2016) | Mi’kmaq communities represented by the Sante’ Mawio’mi (Grand Council) |
| Mi’kmaq Confederacy of PEI Ethics Review Committee (Mi’kmaq Confederacy of PEI, 2019) | Research involving communities represented by the Mi’kmaq Confederacy of PEI |
| UINR—Unama’ki Institute (UNIR, 2016a, 2016b) | Five Mi’kmaw communities of Unama’ki–Eskasoni, Membertou, Potlotek, Wagmatcook, and We’koqma’q |
| Inuit Research Advisors (ArcticNet, 2020) | Research conducted in the Inuit Land Claim regions of the Canadian Arctic |
| Inuit Tapirit Kanatami: The National Inuit Strategy on Research (Inuit Tapirit Kanatami, 2018) | Inuvialuit Settlement Region (Northwest Territories), Nunavut, Nunavik (Northern Québec), and Nunatsiavut (Northern Labrador) |
| Standard of Conduct for Research in Northern Barkley & Clayoquot Sound Communities (Clayoquot Alliance for Research, Education and Training, 2005) | Research involving communities of the Clayoquot Sound Biosphere region |
| Nuu-chah-nulth Tribal Council Research Ethics Committee (Nuu-chah-nulth Tribal Council, 2008) | Research that involves Nuu-chah-nulth communities |
| Ktunaxa Nation's Code of Ethics for Research (Ktunaxa/Kinbasket Tribal Council, 1998) | Research projects that relate to the Ktunaxa Nation |
| Manitoulin Anishinaabek Research Review Committee: Guidelines for Ethical Aboriginal Research (Aboriginal Health Research Review Committee, 2003) | Research in First Nations communities in the Manitoulin district |
| A Community Guide to Protecting Indigenous Knowledge (Brascoupé & Mann, 2001) | Indigenous communities across Canada |
| Manitoba First Nations Education Resource Centre, Inc.: Guidelines for Ethical Research in Manitoba First Nations (MFNERC, 2014) | Research with Manitoba First Nations |
| Assembly of First Nations-First Nations and Inuit Health Branch Engagement Protocol (Assembly of First Nations, 2015) | First Nations and Inuit Communities with programs delivered/funded by FNIHB |
| USAI Research Framework (OFIFC, 2016) | Research projects conducted by the Ontario Federation of Indigenous Friendship Centres (OFIFC) and urban Indigenous communities, in which the OFIFC is involved |
| Alberta First Nations Information Governance (AFNIGC, 2015) | First Nations Peoples of Treaty 6,7, and 8 |