Table 2.
Descriptive statistics of registry and self-report data from participants enrolled in the Project Forward Cohort (n = 1106)
| Variable | No. (Weighted %) |
|---|---|
| Cancer registry data | |
| Age at diagnosis, y | |
| Mean (SD) [range] | 11.60 (5.37) [0-19] |
| 0-4 | 155 (14.3) |
| 5-9 | 214 (19.5) |
| 10-14 | 329 (29.8) |
| 15-19 | 408 (36.5) |
| Years since diagnosis, y | |
| Mean (SD) [range] | 14.54 (4.37) [5-22] |
| 5-9 | 174 (15.7) |
| 10-14 | 354 (31.7) |
| 15-22 | 578 (52.6) |
| Sex | |
| Male | 544 (54.0) |
| Female | 562 (46.0) |
| Age at survey completion, y | |
| Mean (SD) [Range] | 26.15 (4.87) [18-41] |
| Age group at survey completion, y | |
| 18-20 | 131 (11.7) |
| 21-25 | 422 (38.7) |
| 26-30 | 339 (30.3) |
| 31-41 | 214 (19.3) |
| Race and ethnicity | |
| Non-Hispanic White | 324 (27.4) |
| Hispanic | 570 (54.2) |
| Asian | 107 (9.2) |
| Other | 105 (9.2)a |
| Cancer diagnosis | |
| Leukemia | 392 (36.1) |
| Lymphoma | 240 (21.7) |
| Brain and other nervous system | 169 (15.2) |
| Endocrine system | 60 (5.1) |
| Bones and joints | 56 (5.0) |
| Skin | 41 (3.5) |
| Genital system | 56 (5.0) |
| Other | 92 (8.2)b |
| Treatment intensityc | |
| 1 (least intensive) | 69 (6.0) |
| 2 (moderately intensive) | 344 (30.9) |
| 3 (very intensive) | 544 (49.9) |
| 4 (most intensive) | 149 (13.3) |
| Socioeconomic status at diagnosis | |
| Lowest | 344 (34.8) |
| Low | 238 (21.2) |
| Medium | 167 (14.6) |
| High | 180 (14.6) |
| Highest | 177 (14.8) |
| Self-report datad | |
| Health insurance (missing n = 35) | |
| Private | 631 (57.2) |
| Public | 321 (31.1) |
| Other/Unknown | 17 (1.8) |
| None | 102 (10.0) |
| Health-care self-efficacy (missing n = 20)e | |
| Mean (SD) [range] | 4.83 (1.3) [0-6] |
| High levels of depressive symptoms (missing n = 93)f | 353 (35.0) |
| Family influence health-care decisions (yes; missing n = 17) | 935 (85.7) |
| Has doctor for regular (noncancer) health checkups (missing n = 19) | 783 (71.4) |
| Had any health-care visit in prior 2 years (missing n = 0) | 851 (76.4) |
| Discussed cancer-related follow-up care needs with a doctor (yes, in the last 2 years; missing n = 20) | 561 (51.1) |
| Knowledge of need of lifelong follow-up care (missing n = 16) | 698 (63.7) |
| Received cancer-related follow-up care (missing n = 19) | 632 (57.7) |
| Received written cancer treatment summary (missing n = 20) | 481 (43.9) |
| Shared written treatment summary with other doctors (missing n = 1) | 310 (28.1) |
a
Including 53 Black, 39 Middle Eastern, 1 non-Hispanic, American-Indian, and 12 other/unknown.
b
Oral cavity and pharynx, digestive system, respiratory system, soft tissue including heart, urinary system, eye and orbit, and miscellaneous.
c
Intensity of Treatment Rating (based on both registry and self-report data, see Methods).
d
Based on self-report data (all missing less than 5%, except for depressive symptoms, which was 8% missing).
e
Examined as a continuous variable.
f
Center for Epidemiological Studies-Depression score of 16 or greater.