Skip to main content
. Author manuscript; available in PMC: 2023 Jun 1.
Published in final edited form as: J Asthma. 2021 Mar 25;59(6):1269–1275. doi: 10.1080/02770903.2021.1903918

Table 2.

Caregiver Perceptions and Behaviors Relating to Child’s Asthma: Final Categories with Definitions and Illustrative Quotes.

Category Definition Example
Assessment Caregiver’s general knowledge about asthma (e.g. triggers, symptoms, asthma control) and the application of that knowledge to characterize their child’s asthma When older, the wheezing and the coughing come up, then it’s time to take it a little bit more seriously.
Emotion Caregiver and/or child’s negative or positive emotions about asthma, including anxiety, frustration, and acceptance I actually delayed him starting school, because I was terrified of him going to school, and someone else having to take that [management] burden on.
Management Activities undertaken by the caregiver to prevent and/or alleviate child’s asthma symptoms, e.g. limiting activities, avoiding triggers, alternative or non-pharmacological treatments, and seeking formal medical care We did physical therapy, kind of to help her with the breathing… and if it does get worse, then we’ll go to the doctor, the ER.
Support Perceived and actual support or lack of support from others, in the forms of tangible, emotional, and informational support When I had my daughter in softball, some of the other parents …didn’t take it as serious as me… there’s a lack of understanding on their part.
Trust Caregiver’s trust or distrust of the credibility, intentions and competence of others (e.g. HCWs, schools, other caregivers) in caring for their child’s asthma For me, [the pediatrician] told me my son was too young to be diagnosed. I told them they were liars, because he clearly has a problem breathing.