Table 2.
Caregiver Perceptions and Behaviors Relating to Child’s Asthma: Final Categories with Definitions and Illustrative Quotes.
| Category | Definition | Example |
|---|---|---|
| Assessment | Caregiver’s general knowledge about asthma (e.g. triggers, symptoms, asthma control) and the application of that knowledge to characterize their child’s asthma | When older, the wheezing and the coughing come up, then it’s time to take it a little bit more seriously. |
| Emotion | Caregiver and/or child’s negative or positive emotions about asthma, including anxiety, frustration, and acceptance | I actually delayed him starting school, because I was terrified of him going to school, and someone else having to take that [management] burden on. |
| Management | Activities undertaken by the caregiver to prevent and/or alleviate child’s asthma symptoms, e.g. limiting activities, avoiding triggers, alternative or non-pharmacological treatments, and seeking formal medical care | We did physical therapy, kind of to help her with the breathing… and if it does get worse, then we’ll go to the doctor, the ER. |
| Support | Perceived and actual support or lack of support from others, in the forms of tangible, emotional, and informational support | When I had my daughter in softball, some of the other parents …didn’t take it as serious as me… there’s a lack of understanding on their part. |
| Trust | Caregiver’s trust or distrust of the credibility, intentions and competence of others (e.g. HCWs, schools, other caregivers) in caring for their child’s asthma | For me, [the pediatrician] told me my son was too young to be diagnosed. I told them they were liars, because he clearly has a problem breathing. |