Table 1:

Parent and AYA Demographics

Variable	Results
PARENTS	N=37
Non-Bereaved, n (%)	22 (59)
Bereaved, n (%)	15 (41)
Age, median in years [IQR]	47 [45–52]
Gender Female, n (%)	29 (78)
Ethnicity Non-Hispanic or Latino, n (%)	28/32 (86)
Race, n (%)1
White	26 (62)
Asian American	5 (12)
Black or African American	2 (5)
Native Hawaiian or Pacific Islander	2 (5)
American Indian or Alaskan Native	2 (5)
Unknown	5 (12)
Level of Education, n (%)
Less than High School Diploma	1 (3)
High School Diploma	6 (16)
Associate or Trade School	11 (30)
Undergraduate Degree	8 (22)
Graduate Degree	7 (19)
Unknown	4 (11)
Annual Household Income, n (%)
<$50,000	6 (16)
$51,000-$100,000	6 (16)
$101,000-$150,000	5 (14)
>$150,000	5 (14)
Unknown	15 (40)
Marital Status, n (%)
Married	22 (59)
Divorced	9 (24)
Never Married	2 (5)
Unknown	4 (11)
Number of Children (including AYA with advanced cancer), n (%)
1	4 (11)
2–3	22 (59)
4–5	6 (16)
Unknown	5 (14)
Self-Described as Spiritual and/or Religious, n (%)	30/32 (94)
AYAs	N=34
Age at Time of Parent Interviews for Non-bereaved Parents or At Time of Death for Bereaved Parents, median in years [IQR]	17 [15–19]
Gender Female, n (%)	18 (53)
Ethnicity Non-Hispanic or Latino, n (%)	24/30 (80)
Race, n (%)1
White	24 (65)
Asian American	3 (8)
Black or African American	2 (5)
Native Hawaiian or Pacific Islander	1 (3)
American Indian or Alaskan Native	1 (3)
Unknown	6 (16)
Primary Advanced Cancer Diagnosis, n (%)
Hematologic	18 (53)
CNS Tumor	4 (12)
Non-CNS Solid Tumor	12 (35)
Years Since AYA’s Diagnosis to Non-Bereaved Parent Interview, median in years [IQR]	2.5 [1–6]
Years Since AYA’s Death to Bereaved Parent Interview, median in years [IQR]	2 [1.8–3.4]

¹Parents and AYAs reported >1 race; IQR: interquartile range; AYAs: adolescents and young adult; CNS: central nervous system