Table 3.
Studies reporting PROs from validated PROM instruments following genetic testing for breast and ovarian cancer syndrome or Lynch syndrome.
| Study ID | Genetic Disease | PROM Instrument Used |
|---|---|---|
| Beri et al. (2019) [21] | Breast and ovarian cancer | - Cancer Genetics Knowledge Scale - State-Trait Anxiety Inventory - Hospital Anxiety and Depression Scale - Impact of Event Scale - Multidimensional Impact of Cancer Risk Assessment |
| Croyle et al. (1997) | Breast and ovarian cancer | - State-Trait Anxiety Inventory - Impact of Event Scale |
| deWit et al. (1998) [18] | Breast and ovarian cancer | - Impact of Event Scale |
| Esplen et al. (2015) [23] | Lynch syndrome | - Center for Epidemiologic Studies for Depression Scale - State-Trait Anxiety Inventory - Impact of Event Scale - Perception of Lifetime Risk for Colorectal Cancer - Colonoscopy Screening - Ways of Coping Questionnaire - Social Support Questionnaire - Quality of Life Index - Demographic and Medical Information Questionnaire |
| Hughes Halbert et al. (2011) [25] | Breast and ovarian cancer | - Multidimensional Impact of Cancer Risk Assessment |
| Lerman et al. (1996) [27] | Breast and ovarian cancer | - Center for Epidemiologic Studies for Depression Scale - Medical Outcomes Study |
| Lerman et al. (1998) [28] | Breast and ovarian cancer | - Center for Epidemiologic Studies for Depression Scale - Intrusion Subscale of the Revised Impact of Event Scale |
| Manchanda et al. (2019) [32] | Breast and ovarian cancer | - Hospital Anxiety and Depression Scale - Health Anxiety Inventory - Multidimensional Impact of Cancer Risk Assessment - SF12 questionnaire (Physical Health Component Scale and Mental Health Component Scale) |
| Meiser et al. (2018) [33] | Breast and ovarian cancer | - Impact of Event Scale - Hospital Anxiety and Depression Scale - Decision Regret Scale (genetic testing choice and surgery choice) |
| Mella et al. (2017) [34] | Breast and ovarian cancer | - Hospital Anxiety and Depression Scale - Profile of Mood States - Emotional Thermometers (ad hoc instrument) |
| Underhill-Blazey et al. (2020) [37] | Breast, ovarian, and endometrial/uterine cancer | - Multidimensional Impact of Cancer Risk Assessment |
| Voorwinden et al. (2012) [38] | Lynch syndrome Breast and ovarian cancer |
- General Health Questionnaire-12 - Cancer Worry Scale |