Table 1.
Description of the study cohorts and prospective choices protocols across the 10 eMERGE sites.
| Participant selection |
Recruitment method |
Choices offered to participants |
Option to change choices |
||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| Site | Adult | Pediatric | Disease/at risk | No indication | Retrospective | Prospective | Yes, all participants | Yes, some participants | No | Yes | No |
| CCHMCa | – | X | – | X | X | – | X | – | – | – | X |
| CCHMCb | – | X | – | X | – | X | X | – | – | X | – |
| CHOP | – | X | X | – | X | X | X | – | – | X | – |
| CU | X | – | – | X | – | X | X | – | – | X | – |
| x | X | – | X | – | – | X | – | X | N/A | N/A | |
| X | X | – | X | – | – | – | – | X | N/A | N/A | |
| GE | X | – | – | X | X | – | – | – | X | N/A | N/A |
| PHC | X | – | – | X | X | X | – | – | X | N/A | N/A |
| MC | X | – | X | – | – | X | X | – | – | X | – |
| X | X | – | – | – | – | X | X | – | X | – | |
| MMC | X | – | X | – | – | X | X | – | X | N/A | N/A |
| NU | X | – | X | – | X | X | – | – | X | N/A | N/A |
| X | – | – | X | X | – | X | X | – | X | – | |
| KPWA/UW | X | – | X | – | X | – | – | – | X | N/A | N/A |
| X | – | – | – | X | – | X | – | X | N/A | N/A | |
| VU | X | – | – | X | X | – | – | – | X | N/A | N/A |
| X | – | – | – | X | – | X | – | X | N/A | N/A | |
CCHMC Cincinnati Children’s Hospital Medical Center, CHOP Children’s Hospital of Philadelphia, CU Columbia University, GE Geisinger, PHC Partners Healthcare, MC Mayo Clinic, MMC Meharry Medical College, NU Northwestern University, KPWA/UW Kaiser Permanente of Washington/University of Washington, VU Vanderbilt University Medical Center.
a
Biobank cohort.
b
Adolescent cohort.