Table 4.
Relevancy of items of the PNH-SQ
| Relevant | Not relevant | Maybe relevant | Number of participants asked | Percent relevant, % | |
|---|---|---|---|---|---|
| Fatigue | 15 | 0 | 0 | 15 | 100 |
| Shortness of breath | 8 | 1 | 4 | 13 | 62 |
| Muscle weakness | 9 | 3 | 1 | 13 | 69 |
| Headache | 8 | 4 | 0 | 12 | 67 |
| Abdominal pain | 10 | 2 | 0 | 12 | 83 |
| Pain in back or legs | 11 | 1 | 0 | 12 | 92 |
| Chest discomfort | 8 | 5 | 0 | 13 | 62 |
| Sexual difficulties | 9 | 0 | 2 | 11 | 82 |
| Difficulty sleeping | 6 | 1 | 4 | 11 | 55 |
| Difficulty focusing | 11 | 1 | 1 | 13 | 85 |
| Difficulty thinking clearly | 10 | 2 | 0 | 12 | 83 |
| Difficulty swallowing | 10 | 3 | 0 | 13 | 77 |
PNH-SQ Paroxysmal Nocturnal Hemoglobinuria-Symptom Questionnaire