TABLE 5.

Theme: Burdens and hassles with early CGM initiation

Subtheme	Example quote
Accuracy issues	‘I would say the more challenging thing is that it’s not entirely 100% reliable all the time’ ‘The main complaint I have is, it seems like the first six hours or so … it sometimes reads low artificially, which is really annoying. We now have a policy: no putting in new sensors at night … ‘cause nobody wants to get woken up in the middle of the night with a false alarm’
Bleeding with insertion of CGM	‘It started bleeding and it was like his whole arm was almost full of blood, so I had to take it off. I didn’t have any other choice’
Signal loss and other technical shortcomings (e.g., compression lows and adhesive issues)	‘Especially if he is sleeping on top of his arm, it’s no signal. I start getting really worried’ ‘Every now and then, it goes into that error mode where it needs three hours to see whether it can recover’ ‘The first one fell off within five days. The second one was pretty quickly as well and yes, we still have issues to this day. We lost a whole transmitter one time when it just fell off during recess. He didn’t even notice’
High stress when there is no access to data	‘When it’s not working flawlessly, it’s really stressful ‘cause you come to rely on [the CGM] every minute of every day. When you look for the number, you want it to be there …. You get accustomed to seein’ it and then the minute you don’t, it caused a lot of stress’ ‘That period of time when [the CGM] wasn’t working, we weren’t getting alerts. I was sleeping in her room, I think, for a while because I was worried that it would go off, and I wouldn’t hear it’

Abbreviation: CGM, continuous glucose monitoring.