Domain 3: Outcomes for measuring SMIs |
3.1 Basic empowerment |
Level of knowledge,‐ level of health literacy, level of skill acquisition, level of self‐efficacy and level of patient activation |
3.2 Adherence to self‐management behaviours |
Lifestyle‐related behaviours, clinical self‐management behaviours, psychological self‐management behaviours, social self‐management behaviours, interactions and communication with health‐care/social care providers |
3.3 Clinical outcomes |
Disease progression (clinical markers, symptoms), complications, adverse events and mortality |
3.4 Patient/caregiver quality of life |
Overall quality of life, physical functioning, psychological and emotional functioning, social functioning, sexual functioning and burden of treatment |
3.5 Care perceptions/satisfaction |
Overall satisfaction with self‐management interventions, perceptions of being well and sufficiently informed (quality of information provision), perceptions of patient‐provider relationship and personalized care |
3.6 Health‐care use |
Type and number of visits, hospital admissions and readmissions and emergency care |
3.7 Costs |
Health‐care costs for patients, health‐care costs, direct non‐medical costs and societal costs |
Domain 4: Target population |
4.1 As defined by intervention recipient |
Patients, informal caregivers or family caregivers |
4.2 As defined by disease‐related characteristics |
Time since diagnosis, disease severity, comorbidity and multimorbidity |
4.3 As defined by socioeconomic/ demographic characteristics |
Socioeconomic status, cultural group, health literacy, digital literacy, biological sex or gender, age and living situation |