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. 2021 Oct 1;11(10):e055026. doi: 10.1136/bmjopen-2021-055026

Table 2.

Content related recommendations for carer-specific online resource

Content Carer recommendations HCP recommendations
Educational/practical information
  • ‘Schooling for caregivers… to realise the expectations’ (C-U2): practical course that includes ‘basic training in tubes… dressings’ (C-U1), ‘coordinating the medication’ (C-R12), etc.

  • Food/cooking directions suitable for patients undergoing treatment.

  • Stress and crisis management.

  • Importance of self-care, including guilt-free breaks.

  • Bereavement issues.

  • Dealing with boredom.

  • How to ask for and accept help.

  • Tips for communicating with HCPs.

Illness information
  • Information about patients’ illnesses ‘to be more prepared’ (C-U6).

  • Symptoms across stages.

  • Treatments.

  • Palliative care.

Carer stories
  • Experienced carers’ stories.

Supportive Information/links to reputable local supports
  • Access to peer-based support.

  • Locally based support services/home care and how to access.

  • Practical assistance including finding transport support or a wheelchair.

  • Care-related advisory services.

  • Volunteer support.

  • Support groups for varied carer age groups.

  • Employment support.

  • Information about available support services, for example, social work, counselling, palliative care, respite.

  • Already-existing support organisations, for example, helplines.

  • Financial services/negotiating aid.

C, carer; HCP, healthcare professional; R, rural; U, urban.