Phase
		Preconception	Pregnancy	Childbirth	Postpartum
Themes	Communication by healthcare professionals	• Timely, comprehensive information on carriership and consequences	• Timely, comprehensive information on different scenarios • Communication adjusted to personal experiences • Efficient/ coordinated care • Information exchange between involved HCPs	• Delivery plan and discharge information exchange among involved HCPs and HCs • Clear instructions at discharge	• Information transfer to midwife/ maternity care • Written take‐home information for the mother and baby
Lack of knowledge	• HCPs outside CCCs	• Obstetrician/ gynecologist, midwife	• Obstetrician/ gynecologist, midwife	• Maternity care
Feeling insecure	• Upcoming choices during consecutive phases	• Potentially affected child • Safer in CCC • Deciding on PND	• Distance to CCC • Lack of HCP experience with HCs • Mode of delivery • Maternal and neonatal (m/f) bleeding risk	• Testing baby (m/f) • Maternal and neonatal (m/f) bleeding risk
Autonomy	• Timing of carrier diagnosis • Timing and method of preconception counselling	• Gender assessment, PND, TOP • Choice of midwife versus gynecologist • Intensity and timing of outpatient clinic visits	• Choice of midwife versus gynecologist • Location of delivery	• Timing testing baby • Timing counselling on future pregnancies
Family experiences	• Severity of hemophilia and coping of family determines the attitude towards pregnancy	• Severity of hemophilia and family attitudes influence PND and decisions regarding TOP	• Home delivery possible	• ‐

Legend: HCPs = Healthcare professionals; HCs, hemophilia carriers; CCCs = Comprehensive Care Centers; PND = prenatal diagnosis; m = male; f = female; TOP = Termination of pregnancy.