Table 1.
A partial list of available patient reported outcomes measures (provided references are mainly limited to endometrial cancer for brevity)
| Domain | Instrument Abbreviation | Full Instrument Name | Items | Studies | |
|---|---|---|---|---|---|
| Health-Related Quality of Life HRQOL | General QOL (physical, social/family, emotional, and functional) | FACT-G | Functional Assessment of Cancer Therapy | 27 | Kornblith (41) |
| SF-36 | Short-Form Health Survey | 36 | Oldenburg (42) | ||
| EORTC-QLQ | European Organization for Research and Treatment of Cancer Quality of Life Questionnaire | 30 | Nout (43) | ||
| SF-12 | Short-Form Health Survey | 12 | Arms (44) | ||
| Cancer Specific HRQOL | Endometrial specific | FACT-EN | FACT – Endometrial Cancer Subscale | 43 | Rowlands (45) |
| Endometrial specific | EORTC-QLQ-EN24 | EORTC Quality of Life Questionnaire-Endometrial Module | 24 | Nicolaije (46) | |
| Cervix specific | EORTC-QLQ-CX24 | EORTC Quality of Life Questionnaire-Cervix Module | 24 | Ferrandina (47) | |
| Adult cancer survivors | QLACS | Quality of Life in Adults Cancer Survivors | 47 | Song (48) | |
| HRQOL and post-op | EQ-5D | Euroquol 5-D | 5 | Ferguson (49) | |
| Sexuality | Sexual function | FSFI | Female Sexual Function Index | 19 | Ferguson (49) |
| Vaginal changes | SVQ | Sexual Function Vaginal Changes Questionnaire | 27 | Rowlands (45) | |
| Sexual activity | SAQ | Sexual Activity Questionnaire | 10 | Wenzel (50) | |
| Sexual function | PROMIS-Sxf | Patient Reported Outcomes Measurement Information System Sexual Function | 81 | Flynn (51) | |
| Sexual function(interest, activity, enjoyable, dryness) | EORTC_ QLQ-C30 -OV-28 | EORTC Quality of Life Questionnaire-Ovarian Module | 28 | Nout (43) | |
| Sexual function | SSFS | Short Sexual Function Scale | 3 | Aerts (52) | |
| Sexual distress | SSPQ | Specific Sexual Problems Questionnaire | 31 | Aerts (52) | |
| Vaginal and Vulvar Tissue Quality | VAS and VuAS | Vaginal Assessment Scale and Vulvar Assessment Scale | Total 8 | Easton (53) | |
| Symptoms Assessment | Fatigue | FACIT – F: FACT G and FACIT-Fatigue | Functional Assessment of Chronic Illness Therapy - Fatigue | Total 40 | Donnelly (54) |
| Fatigue | BFI | Brief Fatigue Inventory | 9 | Basen-Engquist (55) | |
| Fatigue Assessment Scale | FAS | Fatigue Assessment Scale | 10 | Oldenburg (42) | |
| Pain | BPI | Brief Pain Inventory | 11 | Basen-Engquist (55) | |
| Severity of symptoms interfering with daily functioning | MDASI | MD Anderson Symptom Inventory | 19 | Arms RG (44) | |
| Sleep | PSQI | Pittsburgh Sleep Quality Index | 19 | Clevenger (56) | |
| Weight Loss | WELSQ | Weight Efficacy Life Style Questionnaire | 20 | McCarroll (57) | |
| Exercise Motivation | EMI-2 | Exercise Motivation Inventory | 51 | Nock (58) | |
| Anemia | FACIT-An | Functional Assessment of Chronic Illness - Anemia | 47 | Dangsuwan (59) | |
| Bowel and Bladder (Urinary and bowel symptoms) | EORTC-QLQ-C30-PR-25 | EORTC Quality of Life Questionnaire-Prostate Module | 12 | Nout (43) | |
| Lymphedema | GCLQ | Gynecologic Cancer Lymphedema Questionnaire | 20 | Carter (60) | |
| Neuropathy | FACT/GOG-Ntx | FACT Gynecologic Oncology Group - Neurotoxicity | 11 | Cella (61) | |
| Menopausal Symptoms | FACT-ES | FACT – Endocrine Symptoms | 46 | Li CC (62) | |
| Menopausal Symptoms | MSCL | Menopausal Symptom Checklist | 36 | Carter (60) | |
| Menopausal Symptoms | MRS | Menopause Rating Scale | 11 | Onujiogu (63) | |
| Emotional Well-being | Depression | CESD | Center Epidemiology Scale Depression | 20 | Onujiogu (63) |
| General well-being | WHO-5 | World Health Organization 5 Well-being Scale | 5 | Aerts (52) | |
| Psychological Distress | BSI | Brief Symptom Inventory | 53 | Song (48) | |
| Anxiety / Depression | HADS | Hospital Anxiety and Depression Scale | 14 | Kornblith (41) | |
| Beck Depression Inventory | BDI | Beck Depression Inventory | 21 | Armbruster (64) | |
| Body Image | SABIS-G | Sexual Adjustment and Body Image Scale – Gynecology Cancer | 9 | Ferguson (49) | |
| Life Experiences | M-LES | Modified version of Life Experiences Survey | Original LES: 57 | Telepak (65) | |
| Emotional Coping Scale | Brief COPE | Brief COPE | 28 | Telepak (65) | |
| Anxiety and Depression | SIGH-AD | Structured Interview Guide for the Hamilton Anxiety/ Depression Scale | 22 | Telepak (65) | |
| Anxiety and Depression | IDAS | Inventory of Anxiety and Depression Symptoms | Honerlaw (66) | ||
| Stress | PSS | Perceived Stress Scale | 10 | Song (48) | |
| Cancer Distress | Cancer Distress | IES | Impact of Events Scale | 15 | Honerlaw (66) |
| Relationship | Dyadic Assessment | DAS | Dyadic Adjustment Scale | 32 | Aerts (52) |
| Social Support | SSSA | Sources of Social Support Scale | 50 | Telepak (65) | |
| Decisional Measures | Decision Process | SWD | Satisfaction with Decision Scale | 6 | Arms (44) |