Table I.
Sample Characteristics (N = 73)
| Child | % | N |
|---|---|---|
| Mean Age (SD) | M = 14.24 | SD = 2.48 |
| Sex (female) | 57.3 | 43 |
| Race | ||
| African American | 88.3 | 68 |
| Multi-Racial | 2.6 | 2 |
| Caucasian | 1.3 | 1 |
| Other | 2.6 | 2 |
| Missing | 5.2 | 4 |
| Hemoglobin (Hb) type | ||
| HbSS | 72.7 | 56 |
| HbSC | 15.6 | 12 |
| HbS β+ Thalassemia | 9.1 | 7 |
| HbS β0 Thalassemia | 1.3 | 1 |
| HbSO-Arab | 1.3 | 1 |
| SCD treatments or complications | ||
| Hydroxyurea | 77.9 | 60 |
|
Chronic Transfusion Therapy |
14.3 |
11 |
|
Parent |
% |
N |
| Parent Reporter | ||
| Mother/stepmother | 88.3 | 68 |
| Father/stepfather | 5.2 | 4 |
| Legal guardian (e.g., aunt, grandmother) | 6.5 | 5 |
| Race | ||
| African American | 88.3 | 68 |
| Multi-racial | 9.1 | 7 |
| Hispanic | 1.3 | 1 |
| Other | 1.3 | 1 |
| Mean age (SD) | M = 41.1 | SD = 7.7 |
| Marital status | ||
| Married/Partnered | 41.7 | 30 |
| Single | 33.3 | 24 |
| Divorced/separated | 20.8 | 15 |
| Widowed | 2.8 | 2 |
| Missing | 7.8 | 6 |
| Another caregiver in the home | 56.2 | 41 |
| Highest grade completeda | ||
| High School or less | 15.6 | 12 |
| Some college | 27.3 | 21 |
| College degree | 32.5 | 25 |
| Started graduate or professional school | 2.6 | 2 |
| Graduate or professional degree | 11.7 | 9 |
| Missing | 10.4 | 8 |
| Annual family income | ||
| ≤$10,000 | 2.6 | 2 |
| 10,001–20,000 | 23.4 | 18 |
| $20,001–30,000 | 14.3 | 11 |
| $30,001–50,000 | 19.5 | 15 |
| $50,001–75,000 | 11.7 | 9 |
| ≥$75,001 | 14.3 | 11 |
| Prefer not to answer | 2.6 | 2 |
| Missing | 11.7 | 9 |
| Parent SCD Diagnosis | ||
| Presence | 19.5 | 15 |
| Absence | 77.9 | 60 |
| Missing | 2.6 | 2 |
| Parent chronic pain history | ||
| Presence | 31.2 | 24 |
| Absence | 63.6 | 49 |
| Missing | 5.2 | 4 |
a
Some families filled out educational information for two parents, and thus percentages add to >100%.