Table 2.
Demographic and clinical characteristics of the trial sample
| n (%) | N = 368 | |
|---|---|---|
| Age | Mean (s.d.) | 37.5 (14.3) |
| Median (IQR) | 35 (25, 48) | |
| [range] | [18, 78] | |
| Ethnicity | White | 330 (89.7) |
| Other (Asian, Black, Mixed or Other) | 38 (10.3) | |
| IMD score England (n = 284) | 1. Least deprived | 31 (10.9) |
| 2 | 37 (13.0) | |
| 3 | 54 (19.0) | |
| 4 | 80 (28.2) | |
| 5. Most deprived | 82 (28.9) | |
| IMD score Scotland (n = 77) | 1. Least deprived | 10 (13.0) |
| 2 | 15 (19.5) | |
| 3 | 13 (16.9) | |
| 4 | 16 (20.8) | |
| 5. Most deprived | 23 (29.9) | |
| IMD score Wales (n = 7) | 1. Least deprived | 1 (14.3) |
| 2 | 0 (0.0) | |
| 3 | 0 (0.0) | |
| 4 | 1 (14.3) | |
| 5. Most deprived | 5 (71.4) | |
| Qualifications (n = 367) | None | 43 (11.7) |
| Secondary | 89 (24.3) | |
| Vocational | 120 (32.7) | |
| Further | 56 (15.3) | |
| Higher | 59 (16.1) | |
| Current employment (n = 365) | Employed or in education | 123 (33.7) |
| Not employed or in education | 242 (66.3) | |
| Receiving disability benefits if of working age (<65 years) and not working (n = 233) | Yes | 165 (70.8) |
| Receiving disability benefits if of working age (<65 years) and working (n = 110) | Yes | 18 (16.4) |
| Relationship status | Single | 149 (40.5) |
| Married/cohabiting | 195 (53.0) | |
| Separated/divorced | 19 (5.2) | |
| Widowed | 5 (1.4) | |
| Living arrangements | Alone | 52 (14.1) |
| With others | 316 (85.9) | |
| Has dependents | Yes | 121 (32.9) |
| Relationship of dependent(s)a (n = 121) | Child | 114 (94.2) |
| Other (Partner, parent or other) | 15 (12.5) | |
| Has a carer | Yes | 149 (40.5) |
| Relationship of carer(s)a (n = 149) | Partner | 78 (52.3) |
| Parent | 35 (23.5) | |
| Child | 17 (11.4) | |
| Other (Friend, paid or other) | 52 (34.9) | |
| Belief in diagnosis score (n = 366) | Mean (s.d.) | 8.0 (2.2) |
| Median (IQR) | 8 (7, 10) | |
| [range] | [0, 10] | |
| Age at onset in years (n = 365) | Mean (SD) | 30.9 (14.1) |
| Median (IQR) | 29 (19, 42) | |
| [range] | [1, 76] | |
| Years with DS (n = 365) | Mean (SD) | 6.2 (8.8) |
| Median (IQR) | 3 (1, 8) | |
| [range] | [0, 65] | |
| Currently suffering from any other medical problem (n = 365) | Yes | 261 (71.5) |
| Previously diagnosed with epilepsy (self-report) | Yes | 101 (27.4) |
| Currently prescribed anti-epileptic drugs | Yes | 76 (20.7) |
| Monthly seizure frequency | Median (IQR) | 15 (4, 47) |
| [range] | [0, 649] | |
| Longest period of time without DS in last 6 months (consecutive days) (n = 367) | Median (IQR) | 7 (2, 21) |
| [range] | [0, 119] | |
| Seizure severity | Mean (s.d.) | 4.7 (1.6) |
| 1 = not at all | Median (IQR) | 5 (4, 6) |
| 7 = very severe | [range] | [1, 7] |
| Seizure bothersomeness | Mean (s.d.) | 5.3 (1.7) |
| 1 = not at all | Median (IQR) | 6 (4, 7) |
| 7 = very bothersome | ||
| [range] | [1, 7] | |
| SAPAS-SR (n = 363) | Maladaptive personality traits (⩾4) | 211 (58.1) |
| CORE-10 | Case (distress) (⩾11) | 317 (86.1) |
| GAD-7 | Case (anxiety) (⩾10) | 191 (51.9) |
| PHQ-9 (n = 367) | Case (depression) (⩾10) | 236 (64.3) |
| SF-12v2 Physical Component Summary score (n = 366) | Mean (s.d.) | 39.7 (12.2) |
| [range] | [13.4, 66.0] | |
| SF-12v2 Mental Component Summary score (n = 366) | Mean (s.d.) | 37.8 (11.8) |
| [range] | [13.4, 68.1] | |
| EQ-5D-5L visual analogue scale (health today 1–100) (n = 363) | Mean (s.d.) | 55.5 (23.0) |
| [range] | [1-100] |
a
Totals can add up to more than 100%.