Table 3.
Summary of main questionnaire.
| Name | Target population | Respondent | Number of questions |
|---|---|---|---|
| FAQLQ – PF | Children 0–12 years old | Caregiver | 14 – 25 – 30 |
| FAQLQ - CF | Children 8–12 years old | Children 8–12 years old | 24 |
| FAQLQ – TF | Teenagers 13–17 years old | Teenagers 13–17 years old | 28 |
| FAQLQ – AF | Adult over 18 years old | Adult over 18 years old | 29 |
| FAQLQ – PB | Caregivers | Caregivers | 17 |
| FAIM | Patients | Patients | 6 |
| PedsQL 4.0 | Children (5–18) and parents | Children (5–18) and parents | 13 |
| FA-specific HRQoL by Avery | Children 8–17 years old | Children 8–17 years old | 25 |