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. 2021 Jun 21;49(7):652–663. doi: 10.1111/ceo.13949

TABLE 1.

List of data fields collected for the nAMD audit of the FRB! registry

Field Description Visit type Mandatory
Gender Gender of patient Baseline only Yes a
Year of birth Patient year of birth Baseline only Yes
Ethnicity Ethnicity of patient Baseline only No a
Smoking status Smoker, ex‐smoker or non‐smoker Baseline only No a
Postcode Postcode of patient Baseline only No
Angiographic lesion type Lesion classification using fluorescein angiography and/or optical coherence tomography, judged by treating clinician Baseline only Yes a
Previous treatment Pre‐treatment status of the patient Baseline only Yes
Ocular conditions Other relevant ocular conditions that may affect vision such as glaucoma or cataract Baseline only Yes
Date of visit Date of patient visit Baseline and follow‐up Yes
Treatment Treatment administered for that visit if any Baseline and follow‐up Yes
Visual acuity Number of letters read on a logMAR scale. Best of uncorrected, corrected or pinhole. May be entered in Snellen Baseline and follow‐up Yes
Intraocular pressure Intraocular pressure in mmHg Baseline and follow‐up No
CNV activity Lesion activity status graded as inactive, active with subretinal fluid only, or active with any combination of fluid excluding subretinal fluid only Baseline and follow‐up Yes
Macular atrophy Presence/absence and location of macular atrophy Baseline and follow‐up Yes
Subretinal fibrosis Presence/absence and location of subretinal fibrosis Baseline and follow‐up
Adverse events Treatment complications Follow‐up only Yes
Ocular events Other procedures given not directly related to treatment for nAMD such as cataract extraction or vitrectomy Follow‐up only Yes
Discontinuation Reason for discontinuation of patient from database, including non‐treatment related reasons such as death Follow‐up only No

Abbreviations: CNV, choroidal neovascularisation; FRB!, Fight Retinal Blindness!; nAMD, neovascular age‐related macular degeneration.

a

Option to select undisclosed or unknown even if mandatory.