Table 2.
Relationship between participants’ views on consent (opt in vs opt out) and level of agreement with the conditions on sharing data.
| Conditions on sharing | Type of consent | P value | ||
|
|
Opt in (n=1356), n (%) | Opt out (n=352), n (%) |
|
|
| I am told how my health information will be used | 1215 (89.6) | 284 (80.6) | <.001a | |
| I am told which company will have access to my health information | 1189 (87.7) | 284 (80.6) | .001a | |
| My health information is stored in a safe place | 1285 (94.8) | 312 (88.7) | <.001a | |
| The private company pays for the use of the health information | 848 (62.5) | 210 (59.7) | .38 | |
| The information sharing is approved by an independent ethics committee | 1187 (87.5) | 286 (81.2) | .007a | |
| The private company is required to publish all results—both good and bad | 1180 (87.0) | 288 (81.9) | .02a | |
| The research is likely to lead to benefits for society | 1246 (91.9) | 304 (86.3) | .004a | |
| There are strict rules to stop the information being passed on to anyone else | 1275 (94.0) | 310 (88.1) | <.001a | |
aIndicates level of significance at P<.05.