Table 1.
| Country | Name of MS registry | Institution | Active since | Number of patients |
|---|---|---|---|---|
| Belgium | BELTRIMS | Belgian Study Group for Multiple Sclerosis | 2012 | 1,000 |
| Croatia | AMSSC | Association of Multiple Sclerosis societies of Croatia | 2006 | 2,817 |
| Czechia | ReMuS | IMPULS | 2013 | 10,999 |
| Denmark | The Danish Multiple Sclerosis Registry | The Danish Multiple Sclerosis Center, Rigshospitalet, Copenhagen | 1956 | 25,000 |
| Finland | Finnish MS Register | Finnish Hospital Districts | 2014 | 8,746 |
| France | OFSEP | EDMUS Foundation, Université Claude Bernard, Hospices Civils de Lyon | 1976 (2011a) | 56,400 |
| Germany | MS-Register der DMSG (Bundesverband e.V.) | MS Forschungs- und Projektentwicklungs-gGmbH | 2001 (2014b) | 48,000 |
| Germany | MSDS3D | Center of Clinical Neuroscience, University Hospital Dresden | 1998 | >7,000 |
| Germany | Deutschsprachiges Multiple Sklerose und Kinderwunsch Register (DMSKW) | Kerstin Hellwig | 2006 | 1,500 |
| Germany | REGIMS | Krankheitsbezogenes Kompetenznetz Multiple Sklerose (KKNMS) | 2013 | 700 |
| Germany | NTD Registry database | Ärztenetzwerk NeuroTransData | 2008 (2012c) | 25,000 |
| Greece | The Greek MS Society | The Greek MS Society | 2011 | 5,323 |
| Italy | Italian MS Register | Fondazione Italiana Sclerosi Multipla (FISM)/University of Bari (UNIBA) | 2001 (2016d) | 44,894 |
| Italy | Liguria Regional MS Registrye | No information provided | 2012 | 929 |
| Norway | Norwegian MS Registry and Biobank | Haukeland University Hospital | 2001 | 8,500 |
| Poland | Polish MS Registry (RejSM) | Konskie and AGH University of Science and Technology, Krakow | 2011 | 8,845 |
| Serbia | MS Society of Serbia | Clinic of Neurology, Faculty of Medicine, University of Belgrade and at the Clinical Centre of Serbia | 1996 | 2,250 |
| Spain | Epidemcat (MS Registry of Catalonia) | Department of Heath of the Government of Catalonia | 2008 | 1,520 |
| Sweden | Swedish Neuro Registries—MS | Karolinska University Hospital, Stockholm | 1997 | 18,700 |
| Switzerland | Swiss MS Cohort Studyf | University Hospital of Basel | 2012 | 1,200 |
| Great Britain | UK MS Register | Swansea University | 2009 | 16,000 |
| Australiag | MSBase | MSBase Foundation Ltd. | 2004 | 49,800 |
a
Start of the French OFSEP registry in its current form.
b
Start of the new web-based data collection and of a new minimal data set.
c
Start of web-based data collection.
d
Start of the Italian iMedWeb database (Italian MS registry).
e
Until 2017, the Liguria regional MS registry was part of the Italian MS registry.
f
One of the two Swiss MS databases; a cohort study with fixed follow-up intervals.
g
MSBase is an association of MS expert centers in 33 countries, including in Europe, with its head office in Australia.