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. 2021 Jan 29;3:600333. doi: 10.3389/fdgth.2021.600333

Table 7.

Patients' suggestions for information that TREVOR should provide.

Suggestion Number of quotes
How to prevent VOCs? 3
How to stop a VOC? 3
What are new research advances? 3
At what level are my important biomarkers (e.g., oxygen saturation, hemoglobin)? 2
Can I do a mountain hike /physical exercise today? 2
What are the new / best treatments? 2
What should I eat / drink? 2
How to early detect VOCs? 1
How to erase taboos and stigma? 1
What is my life expectancy? 1