Table 7.
Combined qualitative and quantitative results for collective action by study group.
| NPT | Descriptive themes | Descriptive subthemes | Exemplar quotes | Mean score*± SD | ||
|---|---|---|---|---|---|---|
| Org providers | Care providers | Patients | ||||
| Collective action | Uncovering the challenges of building collective action | Assessing fit | “We have more work to do across the system around truly enacting a person-centered approach to care. If the culture of care does not reflect the SDM via PHR, it won't be well supported or used” “I don't believe we've done a good job of really digging deep into what [is required] to change the culture of care, really create and develop the skill set around that” |
“We will be uncovering people with poor skills on doing the engagement that should have been happening all along without the tool. The tool will expose gaps that in turn might precipitate more anxieties on the part of the providers, because they are going to be asked to do stuff that we took for granted they should be doing all along” | “For young people, we grew up with technology, so for us it is a second language.” “I don't think it would be that much of a change in effort [for patients]; we don't get to not be thinking about [our disease]. So, I think the only difference with this new technology is that it would be shared” |
3.6 ± 0.53 |
| Investing in the change | “e-PHR is likely to be sponsored in theory but not resourced to the extent it needs to be” | “Seeing benefits and return on investment from those conversations and the collaborative decision making with their patients will bring the support” | “If we introduce the concept [to patients of disease management] being in your hands, not just your doctors at an earlier age that would be beneficial” | |||
| Adapting to change together | “We need to clarify the road map and to establish some amount of centralized control, but we don't want to stifle creativity. That is the complexity and the art of public policy” | “Patients automatically assume that you are checking lab work for them daily. But I don't necessarily have the time to be going through and making sure their HbA1c is in target. So, I think figuring out where is the ownership?” | “It would be relinquishing some of the accountability from the providers' side over to the patient which they have not typically been accustomed to… and the different practitioners and teams, it would be moving everybody up I think to a more parallel playing field around roles and responsibilities” | |||
*
1, strongly disagree; 5, strongly agree.