Table 2.
Patient baseline demographics and clinical history
| Characteristic | N |
|---|---|
| Total sample* | 11 |
| Age at time of study | |
| Under 18 | 0 |
| 18–29 | 4 |
| 30–39 | 1 |
| 40–49 | 4 |
| 50–59 | 1 |
| 60–69 | 1 |
| 70+ | 0 |
| Gender | |
| Male | 1 |
| Female | 10 |
| Educational status, highest level attained | |
| High school | 4 |
| College | 5 |
| Graduate degree | 2 |
| Geography | |
| United States | 8 |
| United Kingdom | 1 |
| Germany | 2 |
| Years since diagnosis | |
| 0–5 | 2 |
| 6–10 | 2 |
| 11–20 | 5 |
| 20+ | 2 |
| Treatment status | |
| Currently receiving treatment (prescription or non-prescription) | 11 |
| Not receiving treatment | 0 |
| Treatment (ever received) | |
| Trientine | 7 |
| Penicillamine | 4 |
| Zinc | 6 |
| Low copper diet | 11 |
| Other** | 3 |
*10/11 confirmation of diagnosis forms received
**Occupational and physical therapy, supplements