Table 3.
James supportive care subscale responses at program entry and 6 months
| Breast | Endometrial | Ovarian | ||||
|---|---|---|---|---|---|---|
| Baseline (N = 193) |
6 Months (n-119) |
Baseline (N = 47) | 6 Months (N = 30) | Baseline (N = 66) | 6 months (N = 45) | |
| Health care decision-making concerns | ||||||
| None | 111 (57.5%) | 84 (70.6%) | 31 (66.0%) | 22 (73.3%) | 40 (60.6%) | 35 (79.6%) |
| Mild | 48 (24.9%) | 20 (16.8%) | 8 (17.0%) | 5 (16.7%) | 17 (25.8%) | 5 (11.4%) |
| Moderate | 30 (15.5%) | 12 (10.1%) | 7 (14.9%) | 3 (10%) | 8 (12.1%) | 4 (9.1%) |
| Severe | 4 (2.1%) | 3 (2.5%) | 1 (2.1%) | 0 | 1 (1.5%) | 0 |
| Problems communicating with medical team | ||||||
| None | 170 (88.1%) | 109 (91.6%) | 45 (95.7%) | 26 (86.7%) | 55 (84.6%) | 43 (95.6%) |
| Mild | 15 (7.8%) | 4 (3.4%) | 1 (2.1%) | 3 (10%) | 9 (13.9%) | 2 (4.4%) |
| Moderate | 6 (3.1%) | 6 (5.0%) | 1 (2.1%) | 1 (3.3%) | 0 | 0 |
| Severe | 2 (1.0%) | 0 | 0 | 0 | 1 (1.5%) | 0 |
| Long-term health care planning concerns | ||||||
| None | 124 (64.3%) | 77 (64.7%) | 29 (64.4%) | 20 (66.7%) | 41 (63.1%) | 35 (77.8%) |
| Mild | 36 (18.7%) | 27 (22.7%) | 12 (26.7%) | 8 (26.7%) | 17 (26.2%) | 7 (15.6%) |
| Moderate | 29 (15.0%) | 14 (11.8%) | 4 (8.9%) | 2 (6.7%) | 6 (9.2%) | 3 (6.7%) |
| Severe | 4 (2.1%) | 1 (0.8%) | 0 | 0 | 1 (1.5%) | 0 |
| Lack of information about their treatment or condition | ||||||
| None | 171 (88.6%) | 101 (84.9%) | 40 (90.9%) | 28 (93.3%) | 61 (92.4%) | 40 (88.9%) |
| Mild | 17 (8.8%) | 13 (10.9%) | 3 (6.8%) | 1 (3.3%) | 5 (7.6%) | 4 (8.9%) |
| Moderate | 5 (2.6%) | 5 (4.2%) | 1 (2.3%) | 0 | 0 | 1 (2.2%) |
| Severe | 0 | 0 | 0 | 1 (3.3%) | 0 | 0 |
| Concerns about their living situation | ||||||
| None | 154 (80.2%) | 104 (87.4%) | 40 (85.1%) | 28 (93.3%) | 55 (83.3%) | 41 (93.2%) |
| Mild | 22 (11.5%) | 10 (8.4%) | 4 (8.5%) | 1 (3.3%) | 9 (13.6%) | 1 (2.3%) |
| Moderate | 11 (5.7%) | 3 (2.5%) | 3 (6.4%) | 1 (3.3%) | 2 (3.0%) | 2 (4.5%) |
| Severe | 5 (2.6%) | 2 (1.7%) | 0 | 0 | 0 | 0 |
| Housing problems | ||||||
| None | 164 (85.4%) | 111 (93.3%) | 43 (93.5%) | 29 (96.7%) | 61 (92.4%) | 41 (93.2%) |
| Mild | 18 (9.4%) | 2 (1.7%) | 2 (4.4%) | 1 (3.3%) | 5 (7.6%) | 1 (2.3%) |
| Moderate | 6 (3.1%) | 4 (3.4%) | 1 (2.2%) | 0 | 0 | 1 (2.3%) |
| Severe | 4 (2.1%) | 2 (1.7%) | 0 | 0 | 0 | 1 (2.3%) |
| Lack of support | ||||||
| None | 160 (83.3%) | 103 (86.6%) | 44 (95.7%) | 26 (86.7%) | 61 (93.9%) | 40 (90.9%) |
| Mild | 25 (13.0%) | 12 (10.1%) | 2 (4.4%) | 3 (10%) | 3 (4.6%) | 4 (9.1%) |
| Moderate | 5 (2.6%) | 3 (2.5%) | 0 | 1 (3.3%) | 1 (1.5%) | 0 |
| Severe | 2 (1.0%) | 1 (0.8%) | 0 | 0 | 0 | 0 |
| Financial of insurance problems | ||||||
| None | 116 (60.4%) | 75 (63.0%) | 30 (63.8%) | 16 (53.3%) | 43 (66.2%) | 32 (72.7%) |
| Mild | 43 (22.4%) | 29 (24.4%) | 11 (23.4%) | 11 (36.7%) | 11 (16.9%) | 6 (13.6%) |
| Moderate | 26 (13.5%) | 10 (8.4%) | 5 (10.6%) | 3 (10%) | 9 (13.8%) | 5 (11.4%) |
| Severe | 7 (3.7%) | 5 (4.2%) | 1 (2.1%) | 0 | 2 (3.1%) | 1 (2.3%) |
| Transportation problems | ||||||
| None | 169 (88%) | 112 (94.1%) | 40 (85.1%) | 28 (93.3%) | 60 (90.9%) | 40 (90.9%) |
| Mild | 17 (8.9%) | 5 (4.2%) | 6 (12.8%) | 2 (6.7%) | 2 (3.0%) | 4 (9.9%) |
| Moderate | 5 (2.6%) | 1 (0.8%) | 1 (2.1%) | 0 | 3 (4.6%) | 0 |
| Severe | 1 (0.5%) | 1 (0.8%) | 0 | 0 | 1 (1.5%) | 0 |
| Problems obtaining medications | ||||||
| None | 169 (88.0%) | 104 (87.4%) | 46 (97.9%) | 30 (100%) | 61 (93.9%) | 42 (95.4%) |
| Mild | 17 (8.9%) | 7 (5.9%) | 1 (2.1%) | 0 | 2 (3.1%) | 1 (2.3%) |
| Moderate | 5 (2.6%) | 6 (5.0%) | 0 | 0 | 2 (3.1%) | 1 (2.3%) |
| Severe | 1 (0.5%) | 2 (1.7%) | 0 | 0 | 0 | 0 |