Table 4.
Major themes from clinician interviews
| Theme | Description | Patient Quote |
|---|---|---|
|
| ||
| Satisfaction with survey content | Additional insight into patients’ status | “The forms were more accurate than what the patient was telling me [...] I felt sometimes that if I didn ’t go in with the piece of paper [questionnaire] I would leave there feeling, ‘Okay they ’re fine ’ and then I would go back and look at the form and I’m like, ‘Wait a minute, they ’re not fine. ’” |
| Utility of survey in practice/during treatment | Reviewed surveys with patients | “I would print it out and I would bring it in with me. Then I would review it with them and then you know we would talk about what Ke a vswers were and how they felt about it. It was part of my work flow. ” |
| Need to increase survey frequency | “The once a week thing has got to stop. The symptoms could have already changed, and we could have already addressed it because now you ’re talking about the prior week. ” | |
| Concern about survey burden for patients | “I don’t think patients would be that consistent if they had to do it more than once. ” | |
| PRO tool may have more value post-treatment | Patients are no longer seen weekly post-treatment | “It’s more useful than the ones who are on treatment because we are seeing them every week anyways. And some nurses thought the same thing, we all thought its more useful for the ones who have finished treatment. ” |
| Need for survey recall period to be clear and well understood | “They would fill out the form and then I would get an alert on my email to call the patient because the questionnaire had all these reds. Then I’d call them and they ’d be like ‘No, that symptom went away ’ or ‘It’s much better.’ It never was like ‘Oh okay, it’s still happening. ’” | |
| Care team alert frequency and burden | Alerts for symptoms already addressed | “It would make me feel like you know, okay I called this patient, they ’re telling me they ’re fine, why is this form being singled out, like [why do I] need to call this patient when their symptoms are resolving or had resolved? ” |
| Provide option to be contacted | “For the ones who completed treatment, sometimes for them it would be too much to come in or they would rather just follow-up by phone.” | |
| Information Preferences | Interest in visualizing symptom change over time | “Seeing the trajectory of how things will change [,..]will help us eventually look at if we should put all the patients on Triamcinolone or Mometasone. It could help us to standardi when we start to use them.” |