Table 2.
Survivor-reported concerns captured discretely in the EHR
| Concern Categorya | No. (%) | ||
|---|---|---|---|
| Reported concern | Did not report concern | Missing | |
| Activity | 739 (72.7) | 276 (27.2) | 1 (0.1) |
| Fatigue | 519 (51.1) | ||
| Would like to increase physical activity | 473 (46.6) | ||
| Weakness | 140 (13.8) | ||
| Short of breath with activity | 84 (8.3) | ||
| Employment/insurance | 133 (13.1) | 881 (86.7) | 2 (0.2) |
| Cancer-related financial issues | 69 (6.8) | ||
| Difficulty working due to cancer | 49 (4.8) | ||
| Cancer-related insurance issues | 39 (3.8) | ||
| Unable to work due to cancer | 21 (2.1) | ||
| Endocrine therapy | 231 (22.7) | 785 (77.3) | 0 (0.0) |
| Hot flashes/night sweats | 218 (21.5) | ||
| Arthralgias | 34 (3.3) | ||
| Genetics | 15 (1.5) | 1,001 (98.5) | 0 (0.0) |
| Would like to know about personal and family risk of future cancers | 15 (1.5) | ||
| Memory/concentration | 269 (26.5) | 745 (73.3) | 2 (0.2) |
| Memory is poor | 173 (17.0) | ||
| Trouble concentrating | 139 (13.7) | ||
| Thinking is slow | 135 (13.3) | ||
| Trouble multi-tasking | 110 (10.8) | ||
| Mood | 324 (31.9) | 690 (67.9) | 2 (0.2) |
| Nervous or worried | 226 (22.2) | ||
| Sad or depressed | 134 (13.2) | ||
| Noticed changes in social relationships | 74 (7.3) | ||
| Lost interest in things I used to enjoy | 68 (6.7) | ||
| Nutrition | 677 (66.6) | 338 (33.3) | 1 (0.1) |
| Would like to lose weight | 601 (59.2) | ||
| Would like to improve diet | 216 (21.3) | ||
| Would like to gain weight | 10 (1.0) | ||
| Pain/swelling | 630 (62.0) | 384 (37.8) | 2 (0.2) |
| Pain | 492 (48.4) | ||
| Numbness and tingling | 222 (21.9) | ||
| Swelling | 84 (8.3) | ||
| Trouble moving | 22 (2.2) | ||
| Pregnancy | 31 (3.1) | 315 (31.0) | 670 (65.9) |
| Would like to avoid pregnancy | 29 (2.9) | ||
| Would like to get pregnant | 2 (0.2) | ||
| Primary care | 13 (1.3) | 1,003 (98.7) | 0 (0.0) |
| Would like to find a PCP | 13 (1.3) | ||
| Sexual health | 366 (36.0) | 643 (63.3) | 7 (0.7) |
| Hot flashes/night sweats | 162 (15.9) | ||
| Low interest in sexual activity | 154 (15.2) | ||
| Vaginal dryness | 129 (12.7) | ||
| Body image concerns | 78 (7.7) | ||
| Pain with sexual activity | 27 (2.7) | ||
| Sleep | 426 (41.9) | 590 (58.1) | 0 (0.0) |
| Trouble staying asleep | 314 (30.9) | ||
| Trouble falling asleep | 173 (17.0) | ||
| Feels sleepy during the day | 69 (6.8) | ||
| Legs are restless when trying to sleep | 56 (5.5) | ||
| Substance use | 54 (4.3) | 962 (94.7) | 0 (0.0) |
| Would like to quit smoking | 49 (4.8) | ||
| Would like to cut down on alcohol/drug use | 6 (0.6) | ||
a
Bolded values indicate the number/percentage of survivors who reported at least one concern per category. Non-bolded values indicate the number/percentage of survivors who reported the concern per category. Survivors were able to select more than one concern per category, so non-bolded values do not equal 100%.