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. Author manuscript; available in PMC: 2022 Nov 1.
Published in final edited form as: J Pediatr. 2021 Jun 16;238:249–258.e3. doi: 10.1016/j.jpeds.2021.06.009

Table 4:

Appropriateness of Non-medical Reasons to Enroll Child1

Non-medical Reason2 All (N = 432)3 Percent4 Passed test question (N = 319) Percent4
Offers a way to help other children with cancer
Definitely not appropriate 7 1.9% 3 1.1%
Probably not appropriate 43 10.2% 34 10.9%
Probably appropriate 282 66.3% 207 65.4%
Definitely appropriate 93 21.7% 72 22.6%
Missing 7 3
Offers a way to continue to fight the disease and maintain hope that the child might get better?
Definitely not appropriate 6 1.5% 4 1.5%
Probably not appropriate 44 10.4% 32 10.0%
Probably appropriate 276 64.7% 203 64.2%
Definitely appropriate 99 23.4% 78 24.3%
Missing 7 2
Participating in research that might help other children provides a way to bring some meaning to a bad situation
Definitely not appropriate 6 1.3% 4 1.3%
Probably not appropriate 53 12.7% 41 13.3%
Probably appropriate 280 66.0% 208 66.2%
Definitely appropriate 87 20.1% 64 19.3%
Missing 6 2
Enrolling provides a way for parents to make some money
Definitely not appropriate 238 54.9% 200 62.8%
Probably not appropriate 115 26.8% 85 27.1%
Probably appropriate 64 16.4% 28 9.2%
Definitely appropriate 8 1.9% 3 0.9%
Missing 7 3
There are no other options
Definitely not appropriate 3 0.6% 1 0.3%
Probably not appropriate 32 8.5% 17 6.0%
Probably appropriate 251 58.8% 190 60.3%
Definitely appropriate 139 32.1% 108 33.4%
Missing 7 3
1

Counts unweighted, proportions weighted

2

For verbatim wording of the questions, see supplemental information

3

Only respondents who indicated that non-medical reasons can generally be appropriate were asked these specific questions

4

Respondents who did not answer the question (“Missing”) are not included in the percent calculation