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. Author manuscript; available in PMC: 2022 Nov 1.
Published in final edited form as: J Pediatr. 2021 Jun 16;238:249–258.e3. doi: 10.1016/j.jpeds.2021.06.009

Table 5:

Primary Outcome Questions – Clinical Scenario1

Question2 All (N = 775) Percent3 Passed test questions (N = 474) Percent3
How do the potential medical benefits and risks compare?
Potential medical benefits definitely outweigh risks 109 16.2% 42 9.5%
Potential medical benefits probably outweigh risks 184 25.0% 103 22.6%
Benefits and risks about equal 205 27.2% 126 26.4%
Risks probably outweigh potential medical benefits 151 19.3% 118 24.9%
Risks definitely outweigh potential medical benefits 94 12.3% 78 16.7%
Missing 32 7
Do you think it is appropriate to offer this possible treatment to children?
Definitely not appropriate 74 9.6% 53 11.3%
Probably not appropriate 233 31.3% 165 35.7%
Probably appropriate 336 43.8% 201 41.9%
Definitely appropriate 110 15.3% 52 11.0%
Missing 22 3
How likely would you be to ask your doctor to give your child this possible treatment?
Very likely 122 17.4% 51 11.3%
Likely 291 38.6% 164 34.6%
Unlikely 208 27.0% 143 30.7%
Very unlikely 133 17.0% 111 23.3%
Missing 21 5
1

Counts unweighted, proportions weighted

2

For verbatim wording of the questions, see supplemental information

3

Respondents who did not answer the question (“Missing”) are not included in the percent calculation