Table 5.
Atlas.ti® code groups.
ATLAS.ti Report Bioethical discernment at the End-Of-Life in children with cancer Group of codes Created by Luis Juarez on 12 sep 2021 |
Clinical determinants at End-Of-Life for Decision-Making 4 Codes: • Be alive • Consciousness • End-Of-Life care quality • Right to die |
Decision-Making Clinical guides 12 Codes: • 4 steps of principled negotiation • Advanced care planning, directives • Boston Children's Hospital policy • Caring decision handbook • Children's rights United Nations • Directives of End-Of-Life care • Disputed Intervention, Texas Advance Directives Act (TADA) • Howard's model • Support material for decision making • Symbolic interactionism • Texas Advance Directives Act • Texas Advance Directives Act, protection to clinicians |
Decisions 6 Codes: • Euthanasia Comment: Intentionally terminating life by another person that the person concerned • Futility Comment: The unfortunate situation in which continued therapy will not benefit the patient and, therefore, ought not be used • Limitation of therapeutic effort Comment: Withdraw of medical treatments to avoid non beneficial support • Palliative care Comment: Palliative care in children, adolescents, and young adults with cancer has led to better outcomes for patients and their families, improved quality of life, and relief of suffering • Palliative sedation Comment: The use of sedative medications to relieve intractable and refractory distress by a reduction in patient consciousness • Treatment refusal Comment: Decision to avoid or not accept recommended elective treatment. |
Factors of Patients Decision-Making 6 Codes: • Adolescent and Young Adult (AYA) group cancer facts • AYA preferences, values, beliefs • Children decision making • Children involvement importance • Children's preferences • Patient values |
Medical barriers 11 Codes: • Anxiety of Pediatric Oncologist • AYA barriers • Bad news • Communication skills of Pediatric Oncologist • Complexity of sharing information • Confusion in decision • Discrepancies of treatment • Obstacles to good care of dying children • Pediatric oncology security • Power relationship • Predictors of attitudes and practices |
Medical factors to Decision-Making 63 Codes: • Anxiety of Pediatric Oncologist • Beliefs, emotions medics • Best interest standard • Biological decisions • Clinical judgement • Communication • Contexting decision • Decision making Comment: A good decision is a logical decision -one based on the uncertainties, values, and preferences of the decision maker-. A good outcome is one that is profitable or otherwise highly valued. In short, a good outcome is one that we wish would happen.The distinction between decision and outcome is still not clear for most people • Develop ethical understanding • Discussion about patient's values, prognosis, options and wishes • Dishonesty • Ethical deliberation • Ethical issues • Ethical training • Factors influence medical decision End-Of-Life • Failure feelings of Pediatric Oncologist • Free choice principle • health care providers knowledge • Honesty Comment: Attribute of disclose accurately the extent of knowledge and ignorance • Hospice service • Howard's model • Hubris absent • Human dignity • Interview structure to decision-making • Legality • Mature minor doctrine • Medical attitudes at End-Of-Life • Medical belief • Medical decision-making capacity • Medical deontology • Medical experience • Medical perception • Medical preconceptions • Medical satisfaction • Medical values • Medical-legally discussion • Medical-patient relationship • Moment to give bad news • Moment to give support material • Moral principles • Multidisciplinary consultation • Non-ethical standard • Oncologist time of experience • Paternalism • Philosophical aspects of End-Of-Life • Predictors of attitudes and practices • Prognostic decision • Prolonged physiologic life • Quality of information • Recognizing individualism • Sanctity of life • Satisfaction of Pediatric Oncologist about End-Of-Life care • Shared decision-making, age • Shared decision making (SDM) • Skills to manage symptoms • Social reality, medical decision • Training in palliative care • Understanding of decision • Unrealistic expectation • Who makes decisions • Withhold, withdraw life support • Work's place of Pediatric Oncologist • Wrong decision |
Parents, patients’ factors for Decision-Making 26 Codes: • Beliefs, emotions parents • Cultural relation with decision making • Culture, decision making • Death, place, and time • Decision making involvement • Decisional quality • Disagreement patient-parent • Discussion with shared language • Empower parents • Ethics of families • Ethnic influences on decisions • Family decision making • Family influences about End-Of-Life decision • Health professionals behavioral • Information comprehension• Institution confidence • Interview structure to decision-making• Language • Outcome of shared decision-making • Parental values • Shared decision-making, age • Shared decision-making (SDM) • Understanding of decision • Unrealistic expectation of cure • Who makes decisions • Withhold, withdraw life support |
Principles 4 Codes: • Beneficence Comment: The act of contribution to the welfare of person or humanity • Justice Comment: Appropriate fair, equitable treatment in light of what is due or owed to persons • Non maleficence Comment: The obligation not to inflict harm on others • Respect for autonomy Comment: Individual decision making in health care, self-rule free from controlled interference |
Virtues 7 Codes: • Compassion Comment: The disposition to comprehend, assess and weigh the uniqueness of patient´s predicament of illness • Empathy • Honesty Comment: Attribute of disclose accurately the extent of knowledge and ignorance • Integrity Comment: The person can integrate all the virtues into a whole and can prudentially judge to reach a decision to act • Phronesis Comment: The capacity of moral insight, the capacity to discern what moral choice or course of action is most conducive to the good • Responsibility • Veracity Comment: The capacity of tell the whole truth |
Codes without group 6 Codes: • Advance directive • Clinical trials participation • Duration, cost of medical futile • Futile mediation • Futility definition • Futility, treatment goals |
Report of all the groups of codes created to analyze the articles included. Every color is associated with each group of codes to facilitate the analysis of corresponding network.