Table 1:

SCID Cohort Characteristics

Sex (n=151)	105 male (70%)
Proportion who had newborn screening (n=151)	63 (42%)
Age (years) of survivors (n=136) at time of survey	<2	18 (13%)
	2 – 5	32 (24%)
	5 – 10	31 (23%)
	10 – 20	27 (20%)
	20 – 30	20 (15%)
	30 – 42	8 (6%)
Age (years) of survivors (n=61) at time of survey who had been diagnosed by newborn screening	<2	17 (28%)
	2 – 5	28 (46%)
	5 – 10	15 (24%)
	11	1 (2%)
Median age and range (years) of patients with SCID responding for themselves (n=6)	31.5 (range 20 – 42)
Median age and range (years) of patients with SCID for whom a parent or caregiver responded (n=146)	5 (range 0–36)