Table 4.

Overview of Codes From Consensus 1: “What Can We Learn and How Can We Value”

Codes
Important for evaluating aid
Provides healthcare professionals with more objective or concrete information on the patient
Crucial for how well the patient handles the illness and treatment through the cancer care trajectory
Reveals areas where the help provided is not good enough
Next-of-kin who observe and interpret what happens to the patient are important, and they need to be trained in basic skills
Important throughout the cancer care trajectory. Next-of-kin have an eye for “the whole life”
Next-of-kin that are secure in their role can contribute to patient safety
Poor continuity of healthcare professionals creates unsafe next-of-kin
Healthcare professionals need more knowledge of next-of-kin involvement
Acknowledge the next-of-kin role as a coordination role that needs to be adjusted to individual needs
Next-of-kin experiences should be documented and systematized (user surveys, “heart sigh” book, next-of-kin notice in the documentation system)
Coherence between service levels (hospital and municipalities) with support from volunteer organizations
Be aware of those patients who do not have a next-of-kin
System improvement that uses next-of-kin evaluation as a measure (user surveys)
Double loop learning with respond to service users