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. 2021 Nov 3;16:463. doi: 10.1186/s13023-021-02069-9

Table 4.

Participants providing free-text comments

Participants Q.34a (N = 72) Q.35b (N = 133)
N % N %
Child 0 0.0% 8 6.0%
Adult 53 73.6% 101 75.9%
PGC 19 26.4% 24 18.1%

aQ.34: “Is there any major topic which has not been covered in this questionnaire?”; bQ.35: “Is there anything else that you would like to share with us?”