Table 3.
PRO descriptive analysis
| Characteristics | Patients |
|---|---|
| ILQI total (alternative) score | |
| N | 1506 |
| Mean (SD) | 21 (7.0) |
| Range | 10–40 |
| Missing | 1a |
| Do you currently have fatigue? n (%) | |
| Yes | 752 (49.9%) |
| No | 755 (50.1%) |
| Other clinical and demographic questions | |
| Do you currently have depression? n (%) | |
| Yes | 270 (17.9%) |
| No | 1237 (82.1%) |
| Hide signs of bleeding, n (%) | |
| “I often wear long-sleeved clothing, even when it is warm, to hide the signs of bleeding” | |
| 1—not at all | 568 (37.7%) |
| 2 | 216 (14.3%) |
| 3 | 134 (8.9%) |
| 4 | 166 (11.0%) |
| 5 | 141 (9.4%) |
| 6 | 131 (8.7%) |
| 7—a great deal | 151 (10.0) |
| Impact on emotional well-being, n (%) | |
| “I worry that my platelet count goes up and down for no apparent reason” | |
| 1—not at all | 101 (6.7%) |
| 2 | 200 (13.3%) |
| 3 | 214 (14.2%) |
| 4 | 253 (16.8%) |
| 5 | 322 (21.4%) |
| 6 | 220 (14.6%) |
| 7—a great deal | 197 (13.1%) |
| Work hours missed, n (%) | |
| “During the past 7 days, how many hours did you miss from work because of problems associated with your ITP?” | |
| N | 893 |
| Mean (SD) | 6 (15.1) |
| Range | 0–168 |
| Missing | 614 |
| Effect on work productivity, n (%) | |
| “During the past 7 days, how much did your ITP affect your productivity while you were working?” | |
| 1 = ITP had no effect on my work, 10 = ITP completely prevented me from working | |
| N | 898 |
| Mean (SD) | 4 (2.6) |
| Range | 1–10 |
| Missing | 609 |
aOf note, one patient only answered the N/A questions and not any other question, therefore a score could not be calculated using the alternate scoring procedure. Therefore there is a missing n = 1. A score could be calculated for the total score, although this score will not be truly accurate as the patient only answered the N/A options