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. 2021 Nov 8;16(11):e0258646. doi: 10.1371/journal.pone.0258646

Table 6. Summary of experiences of participants, patients and public with receiving results.

Experiences of receiving IRR Participants Patients Publics
Moderate to high satisfaction [8, 87, 174, 184]
Relief [9, 79, 87, 153, 175, 176, 185, 186]
Gratitude [153, 176]
Increased knowledge [43]
Decreased anxiety [43]
High rates of wellbeing [8]
Positive emotions [187]
Low levels of uncertainty [188] [189]
Low levels of negative emotions [159, 188]
Low levels of concern [190, 191]
No or low levels of distress [83, 87, 188, 192] [189]
No impact on anxiety or depression [31, 180, 193]
No impact of self-rated health [176]
No adverse impact on quality of life [175, 176]
No psychological harm [83] [194]
Low perceived harm [181]
No adverse impact on wellbeing [193]
No adverse effects on emotions [176]
No or little regret [79, 87, 155, 174, 177181, 188] [189]
Lower regret if chose to receive IRR [155, 182]
No fatalistic reactions [195]
Some distress or worry [80, 176, 180, 186, 196, 197]
Some anxiety and depression [175, 179, 198201]
Lower positive feelings [176]
Disappointment [175]
Concern [83, 175, 199]
Guilt [180, 202]
Indifference [175]
Uncertainty and confusion [175, 176, 180, 182, 203]
Increased perception of risk [80, 83] [204]
Desire for more results [174, 175]