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. 2021 May 26;10:420. [Version 1] doi: 10.12688/f1000research.51936.1

Table 3. Description of Mean Uncertainty Score (MUIS-C) (N = 153).

Scale item Mean (SD)
  • 1.
    I do not know what is wrong with me.
2.5 (1.1)
  • 2.
    I have a lot of questions without answers.
2.9 (1.2)
  • 3.
    I am unsure if my illness is getting better or worse.
3.1 (1.1)
  • 4.
    It is unclear how bad my pain will be.
3.3 (1.1)
  • 5.
    The explanations they give about my condition seem hazy to me.
2.76 (1.1)
  • 6.
    The purpose of each treatment is clear to me.
2 (0.9)
  • 7.
    My symptoms continue to change unpredictably.
3.67 (0.86)
  • 8.
    I understand everything explained to me.
1.8 (0.7)
  • 9.
    The doctors say things to me that could have many meanings.
2.79 (1)
  • 10.
    My treatment is too complex to figure out.
2.6 (0.7)
  • 11.
    It is difficult to know if the treatments or medications I am getting are helping.
2.7 (0.9)
  • 12.
    Because of the unpredictability of my illness, I cannot plan for the future.
3.4 (1)
  • 13.
    The course of my illness keeps changing. I have good and bad days.
3.8 (0.87)
  • 14.
    I have been given many differing opinions about what is wrong with me.
2.72 (0.9)
  • 15.
    It is not clear what is going to happen to me.
3.5 (0.9)
  • 16.
    The results of my test are inconsistent.
3 (0.7)
  • 17.
    The effectiveness of the treatment is undetermined.
2.9 (0.8)
  • 18.
    Because of the treatment, what I can do and cannot do keeps changing.
3.67 (0.9)
  • 19.
    I’m certain they will not find anything else wrong with me.
2.3 (1.2)
  • 20.
    The treatment I am receiving has a known probability of success.
2.7 (0.7)
  • 21.
    They have not given me a specific diagnosis.
2.47 (1)
  • 22.
    The seriousness of my illness has been determined.
2.71 (1)
  • 23.
    The doctors and nurses use everyday language so I can understand what they are saying.
2.45 (0.9)
Total mean 66.1 (SD, 11.1)