Table 4.
Characteristics of Children with Neurological Conditions in Concurrent Hospice Care within Two-Class Model (N=1,601)
| Variables | All Children | Class 1 Moderate Intensity n = 933 |
Class 2 High Intensity n = 668 |
|---|---|---|---|
| Age Groups (%) | |||
| <1 yr | 14.1 | 10.9 | 18.4 |
| 1 to 5 yrs | 37.7 | 36.1 | 40.0 |
| 6 to 14 yrs | 31.9 | 33.2 | 30.0 |
| 15 to 20 yrs | 16.3 | 19.8 | 11.6 |
| Gender (%) | |||
| Female | 46.6 | 47.5 | 45.4 |
| Male | 53.4 | 52.5 | 54.6 |
| Race (%) | |||
| Caucasian | 38.7 | 44.9 | 30.1 |
| Black | 13.9 | 14.8 | 12.6 |
| Other Races | 47.4 | 40.3 | 57.3 |
| Ethnicity (%) | |||
| Hispanic | 22.4 | 22.1 | 22.9 |
| Non-Hispanic | 77.6 | 77.9 | 77.1 |
| Neurological Conditions a (%) | |||
| Brain and spinal cord malformations | 41.19 | 39.8 | 43.1 |
| Intellectual function | 13.14 | 12.5 | 14.1 |
| CNS degeneration and diseases | 74.28 | 63.8 | 89.0 |
| Infantile cerebral palsy | 40.13 | 36.7 | 44.9 |
| Epilepsy | 31.89 | 27.9 | 37.5 |
| Other disorders | 20.44 | 19.1 | 22.4 |
| Comorbidities (%) | 84.8 | 77.5 | 94.9 |
| Mental/Behavioral Health Conditions (%) | 67.6 | 62.0 | 75.5 |
| Technology Dependence (%) | 72.6 | 63.6 | 85.3 |
| Rural/Urban (%) | |||
| Urban | 51.1 | 53.0 | 48.5 |
| Rural | 49.5 | 47.4 | 52.4 |
| Region (%) | |||
| Midwest | 20.3 | 21.0 | 19.3 |
| Northeast | 16.3 | 25.4 | <10.0 |
| South | 41.7 | 34.0 | 52.5 |
| West | 21.7 | 19.6 | 24.6 |
a
Neurological conditions are not mutually exclusive; <10.0 is noted for values under 10% per Data Use Agreement; CNS = central nervous system