Table 1.

Summary of data collected by the Better Outcomes Registry & Network (BORN) information system

Encounter type or data holding	Description
Assisted reproductive technology (ART)3,4	Collects information on in vitro fertilization treatment cycles from fertility clinics across Canada collected into the Canadian Assisted Reproductive Technology Register (CARTR Plus)   Also includes record-level details on any ART treatment cycles from Ontario fertility clinics that result in a pregnancy that is delivered at >20 weeks’ gestation that are automatically linked with other records within the BORN Information System
Antenatal general	Captures information relevant to the antenatal period (i.e. obstetrical history, exposures, complications, etc.)
Antenatal specialty	Captures maternal, pregnancy and fetal information for women who require specialized care management at a high-risk maternal fetal medicine or prenatal genetic clinic
Prenatal screening and follow-up5,6	Prenatal screening records for every pregnant individual who receives any form of prenatal screening in Ontario   Includes information from laboratory and ultrasound testing, clinical assessment, genetic counselling and diagnostic testing from prenatal screening, as well as screening and diagnostic results
Non-invasive prenatal testing7	Information captured during non-invasive prenatal testing for fetal genetic disorders
Cytogenetics	Information related to the clinical indications and results of maternal and child cytogenetic testing
Labour and birth	Captures information relevant to the pregnant person’s spontaneous or induced labour and birth experience through to the first hour postpartum whether this occurs in hospital, at home or in a birth centre   Midwifery–client specific data are also captured in the midwifery encounter
Birth–child	Documents a child's birth experience through to the first hour postpartum
Postpartum mother	Documents the course of care experienced by the mother from 1 hour post birth to discharge from hospital
Postpartum child	Documents the course of care experienced by the child from 1 hour post birth to discharge from hospital
Newborn screening and diagnostic evaluations	Screening tests and results from the provincial newborn-screening laboratory (including hearing and congenital heart disease)   Information on short-term follow-up, clinical status, diagnostic information and treatment plans for infants who received a positive newborn screen are also available
Neonatal intensive care/special care units	Information collected during infant stays in neonatal intensive care units and special care nurseries
Midwifery practice group data	Data on prenatal and birth care (home, hospital and birth-centre births) provided by midwives in Ontario
Well Baby Well Child visit information	Information obtained through regular assessments of a baby or child’s development   Includes age, height, weight, vaccinations and documentation of developmental milestones using the standardized measures (Rourke Baby Record Ontario, Nipissing District Developmental Screen)
Healthy Babies Healthy Children (HBHC) programme	Information collected from completion of the standardized HBHC Screening Tool, which facilitates identification of risk factors that may affect a child’s healthy development and referral to community programmes and services   Screening is voluntary and consent-based   BORN facilitates the transfer of this information from hospitals/homes to public-health units who provide the follow-up

Citations are provided where data elements have been previously validated or described in detail.