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. 2021 Nov 11;16(11):e0259855. doi: 10.1371/journal.pone.0259855

Table 2. Instruments used in the online survey.

Concept Instrument (abbreviation)
Health related Quality of Life EQ-5D-5L [20, 42, 43]
Quality of care from the patient’s perspective Patient Assessment of Chronic Illness Care (PACIC)–Short Form [23, 24]
Degree of control for individuals when decisions are being made regarding medical treatment Computerized Control Preference Scale (eCPS) [21]
Impact of MS on day-to-day life Multiple Sclerosis Impact Scale (MSIS-29) [22]
Disability and walking ability in Multiple Sclerosis Patient Determined Disease Steps (PDDS) [2527]
Social support Brief Social Support Scale (BS6) [28]
Social participation Short Scale Measuring Perceived Social Participation (KsT-5) [32]
World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) [33, 44]
Self-efficacy Generalized Self Efficacy scale (GSE) [29, 30]
Self-efficacy regarding use of the assistive devices self-efficacy regarding assistive device use scale developed by Roelands et al. [41]
Reasons for non-use of an assistive device Assistive Technology Device Predisposition Assessment (ATD PA) [3840]
Evaluation of the assistive device delivery process “Kwaliteit van Zorg” (KWAZO) [36, 37]
Satisfaction with the assistive device Device subscale from the Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2.0-G) [34, 35]

To check the comprehensibility and redundancy of the questionnaire, comprehensive cognitive pre-tests according to the concurrent think-aloud method were conducted [56]. The resulting revision of the questionnaire was likewise pretested. As an incentive for taking part in the survey, the DMSG Lower Saxony organises a day trip to a local zoo for 25 randomly chosen families of participating PwMS.