Table 2. Instruments used in the online survey.
Concept | Instrument (abbreviation) |
---|---|
Health related Quality of Life | EQ-5D-5L [20, 42, 43] |
Quality of care from the patient’s perspective | Patient Assessment of Chronic Illness Care (PACIC)–Short Form [23, 24] |
Degree of control for individuals when decisions are being made regarding medical treatment | Computerized Control Preference Scale (eCPS) [21] |
Impact of MS on day-to-day life | Multiple Sclerosis Impact Scale (MSIS-29) [22] |
Disability and walking ability in Multiple Sclerosis | Patient Determined Disease Steps (PDDS) [25–27] |
Social support | Brief Social Support Scale (BS6) [28] |
Social participation | Short Scale Measuring Perceived Social Participation (KsT-5) [32] |
World Health Organization Disability Assessment Schedule 2.0 (WHODAS 2.0) [33, 44] | |
Self-efficacy | Generalized Self Efficacy scale (GSE) [29, 30] |
Self-efficacy regarding use of the assistive devices | self-efficacy regarding assistive device use scale developed by Roelands et al. [41] |
Reasons for non-use of an assistive device | Assistive Technology Device Predisposition Assessment (ATD PA) [38–40] |
Evaluation of the assistive device delivery process | “Kwaliteit van Zorg” (KWAZO) [36, 37] |
Satisfaction with the assistive device | Device subscale from the Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2.0-G) [34, 35] |
To check the comprehensibility and redundancy of the questionnaire, comprehensive cognitive pre-tests according to the concurrent think-aloud method were conducted [56]. The resulting revision of the questionnaire was likewise pretested. As an incentive for taking part in the survey, the DMSG Lower Saxony organises a day trip to a local zoo for 25 randomly chosen families of participating PwMS.