Table 1.
Characteristics of studies included in the scoping review.
| References | Sample size | Age (years) | Population | Race/Ethnicity (%) | Health outcome category | Specific health outcomes |
|---|---|---|---|---|---|---|
| Armstrong et al. (22) | N = 26443 | 0–18 | SEER | NHB (8.8); H (14.4) | Survival rates | All-cause mortality; non-recurrence/non-external mortality |
| Arpawong et al. (23) | N = 94 | 11–21 | Treatment Center | Hispanic (English 27.6; ESL, 19.1) | Patient-reported outcomes | Post-traumatic growth, post-traumatic stress |
| Barrera et al. (24) | N = 74 | 8–16* | Canadian Children's | Black (5.4) | Patient-reported outcomes | Quality of life and emotional quality of life |
| Berkman et al. (25) | N = 164316 | 0–34* | SEER | Black (10.7) | Chronic health conditions and survival rates | Cardiovascular conditions, overall mortality |
| Castellino et al. (26) | N = 8767 | ≥18 | CCSS | Hispanic (15.6) | Healthcare utilization, patient-reported outcomes | Screening, mental health |
| Choudhary et al. (27) | N = 484 | 2–36** | Sloan Kettering | Black (12.1); Hispanic (15.6) | Chronic health conditions | Vitamin-D deficiency i.e. chemiluminescent assay |
| Daly et al. (28) | N = 866 | >6 | CHOA | 48.5% Non-White | Healthcare utilization | Initial visit |
| Gance-Cleveland et al. (29) | N = 321 | 6–21* | Survivor Clinic | Black (2.4); Hispanic (29.9) | Chronic health conditions | Obesity |
| Kehm et al. (30) | N = 31866 | 0–19* | SEER | NHB (11.8); Hispanic (31.5) | Survival rates | Overall survival |
| Liu et al. (31) | N = 13841 | 8–58 | CCSS | NHB (5); Hispanic (5.4) | Survival rates and chronic health conditions | Cardiovascular condition, overall mortality |
| Lu et al. (32) | N = 10362 | 18–38 | CCSS | NHB (4.3); Hispanic (1.9) | Patient-reported outcomes | Pain |
| Meeske et al. (33) | N = 86 | 8–18* | CHLA | Hispanic (48%) | Patient-reported outcomes | Total and psychosocial function |
| Meeske et al. (34) | N = 139 | 14–25**+ | CSP | Hispanic (US, 12.9; foreign born 43.8) | Patient-reported outcomes | Parent post-traumatic stress, depression |
| Milam et al. (35) | N = 193 | 14–25** | LA SEER | Hispanic (54.4) | Healthcare utilization | Follow-up care |
| Miller et al. (36) | N = 193 | ≥15 | LA SEER | Hispanic (54.4) | Healthcare utilization | Healthcare self-efficacy |
| Miller et al. (37) | N = 193 | ≥15* | LA SEER | Hispanic (54.4) | Healthcare utilization | Information seeking |
| Oikonomou et al. (38) | N = 88,418 | 0–19* | SEER | Black (10.7); Other (8.1) | Chronic health conditions | Cardiovascular condition |
| Raghubar et al. (39) | N = 114 | 5–21*+ | CHLA | Hispanic (29.8); Other (19.2) | Patient-reported outcomes | Adaptive functioning |
| Samaan et al. (40) | N = 5956 | 0–19** | SEER | Non-White (17.8) | Survival rates | Mortality to incidence ratio and relative survival trend |
| Santacroce et al. (41) | N = 15 | 37.9 +# | Clinic | Black (33.3) | Patient-reported outcomes | Uncertainty, anxiety, stress |
| Tobin et al. (42) | N = 235 | 14–25 | CSP | Hispanic (56.2) | Patient-Reported outcome | Post-traumatic growth |
| Wasilewski-Masker et al. (43) | N = 519 | 12.1# | CHOA | Black (14) | Chronic health condition | Severity of symptoms (CTCEA) |
| Zebrack et al. (44) | N = 6425 | ≥18 | CCSS | Non-White (6.4) | Patient-reported outcomes | Positive impact |
*
Less than 5 years since last treatment;
**
No information on years since last treatment;
+
Parent responses;
#
Mean age reported in years at survey/assessment; Reference Group: Non-Hispanic White.
CCSS, Childhood Cancer Survivor Study; CHLA, Children's Hospital of Los Angeles; CHOA, Childhood Healthcare of Atlanta; CHOC, Children's Hospital of Orange County; CSP, Los Angeles Cancer Surveillance Program; SEER, Surveillance Epidemiology and End Results Program.