Table 5.

Specific preferences in regards to biobanking-related aspects

Preferred level of informed consent when participating in a biobank and donating a biospecimen
Broad consent	138 (31.7)
Research-specific consent	166 (38.2)
One-time consent with conditional re-contact	131 (30.1)
Preferred procedure to protect donor identity when collecting biospecimens
Code biospecimens with possible re-identification	216 (49.7)
Irreversibly de-identify biospecimen at a later stage upon request	120 (27.6)
Irreversibly de-identify biospecimens at the time of collection	98 (22.5)
Neutral	1 (0.2)
When to contact participants if specific results to their biospecimens are generated
Re-contact under all circumstances	293 (67.4)
Re-contact me only in definite cases of having or increasing the possibility of having a disease	100 (23.0)
Re-contact me only in definite cases of having or increasing the possibility of having a treatable disease	37 (8.5)
Never re-contact me	5 (1.1)
In case of deciding to withdraw from a biobank
Disposal of biospecimens only	31 (7.1)
Deleting all data only	41 (9.4)
Disposal of both biospecimen and data	225 (51.7)
Removing donor identifiers, but keep biospecimens and data for future research	138 (31.7)