Table 2.
Item level distribution of items included in the questionnaire used during outpatient follow-up among CF patients (N = 41).
| Symptom difficulties |
Distribution (%) of response options |
|||||
|---|---|---|---|---|---|---|
| Item | Indicate how you have been feeling during the past two weeks | A great deal | Somewhat | A little | Not at all | Missing |
| CFQ-R-39 | Have you had trouble gaining weight? | 0 | 1 (2.4) | 6 (14.6) | 32 (78.1) | 2 (4.9) |
| CFQ-R-40 | Have you been congested? | 2 (4.9) | 2 (4.9) | 20 (48.8) | 16 (39.0) | 1 (2.4) |
| CFQ-R-41 | Have you been coughing during the day? | 2 (4.9) | 6 (14.6) | 31 (75.6) | 1 (2.4) | 1 (2.4) |
| CFQ-R-42 | Have you had to cough up mucus? | 1 (2.4) | 4 (9.8) | 27 (65.9) | 8 (19.5) | 1 (2.4) |
| Ad hoc | Have you had constipation? | 0 | 2 (4.9) | 5 (12.2) | 33 (80.5) | 1 (2.4) |
| Ad hoc | Have you had jaw and/or forehead pain? | 1 (2.4) | 2 (4.9) | 8 (19.5) | 29 (70.7) | 1 (2.4) |
| Ad hoc | Have you had fatigue, lethargy, and/or malaise? | 2 (4.9) | 4 (9.8) | 19 (46.3) | 15 (36.6) | 1 (2.4) |
| How often during the past two weeks: | Always | Often | Sometimes | Never | Missing | |
| CFQ-R-44 | Have you been wheezing? | 0 | 0 | 18 (43.9) | 22 (53.7) | 1 (2.4) |
| CFQ-R-45 | Have you had trouble breathing? | 0 | 1 (2.4) | 7 (17.1) | 32 (78.1) | 1 (2.4) |
| CFQ-R-46 | Have you woken up during the night because you were coughing? | 0 | 1 (2.4) | 15 (36.6) | 24 (58.5) | 1 (2.4) |
| CFQ-R-47 | Have you had problems with wind? | 2 (4.9) | 8 (19.5) | 19 (46.3) | 11 (26.8) | 1 (2.4) |
| CFQ-R-48 | Have you had diarrhea? | 0 | 0 | 13 (31.7) | 27 (65.9) | 1 (2.4) |
| CFQ-R-49 | Have you had abdominal pain? | 0 | 6 (14.6) | 10 (24.4) | 24 (58.5) | 1 (2.4) |
| CFQ-R-50 | Have you had problems eating? | 0 | 1 (2.4) | 6 (14.6) | 33 (80.5) | 1 (2.4) |
| Excellent | Good | Fair | Poor | Missing | ||
| CFQ-R-18 | How do you think your health is now? | 9 (22) | 26 (63.4) | 4 (9.8) | 1 (2.4) | 1 (2.4) |
CFQ-R: Cystic Fibrosis Questionnaire-Revised